Coping with an HIV infection. A multicenter qualitative survey on HIV positive adolescents' perceptions of their disease, therapeutic adherence and treatment.

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State: Public
Version: Final published version
Serval ID
serval:BIB_FD97A6B30624
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Coping with an HIV infection. A multicenter qualitative survey on HIV positive adolescents' perceptions of their disease, therapeutic adherence and treatment.
Journal
Swiss Medical Weekly
Author(s)
Michaud P.A., Suris J.C., Thomas R., Gnehm H.E., Cheseaux J.J.
Working group(s)
Swiss HIV Mother+Child Cohort Study (MoCHiV)
Contributor(s)
Battegay M., Bernasconi E., Böni J., Bucher HC., Bürgisser P., Calmy A., Cattacin S., Cavassini M., Cheseaux JJ., Drack G., Dubs R., Egger M., Elzi L., Erb P., Fischer M., Flepp M., Fontana A., Francioli P., Furrer HJ., Fux C., Gayet-Ageron A., Gerber S., Gorgievski M., Grawe C., Günthard H., Gyr T., Hirsch H., Hirschel B., Hösli I., Hüsler M., Kaiser L., Kahlert Ch., Karrer U., Kind C., Klimkait T., Ledergerber B., Martinetti G., Martinez B., Müller N., Nadal D., Opravil M., Paccaud F., Pantaleo G., Rauch A., Regenass S., Rickenbach M., Rudin C., Schmid P., Schultze D., Schüpbach J., Speck R., Taffé P., Tarr P., Telenti A., Trkola A., Vernazza P., Weber R., Wechsler A., Wunder D., Wyler CA., Yerly S.
ISSN
1424-3997 (Electronic)
ISSN-L
0036-7672
Publication state
Published
Issued date
2010
Peer-reviewed
Oui
Volume
140
Number
17-18
Pages
247-253
Language
english
Notes
Publication types: Journal Article ; Multicenter Study ; Research Support, Non-U.S. Gov't
Publication Status: ppublish
Abstract
HIV-positive adolescents face a number of challenges in dealing with their disease and its treatment. In this qualitative study, twenty-nine HIV-positive adolescents aged 13 to 20 years (22 girls), who live in Switzerland, were asked, in a semi-structured interview (duration of 40-110 minutes), to describe their perceptions and experiences with the disease itself and with therapeutic adherence. While younger adolescents most often thought of their disease as fate, older adolescents usually knew that they had received it through vertical transmission, although the topic appeared to be particularly difficult to discuss for those living with their HIV-positive mothers. Based on their attending physician's assessment, 18 subjects were judged highly adherent, 4 fairly and 7 poorly adherent. High adherence appeared linked with adequate psychological adjustment and effective coping mechanisms, as well as with the discussion and adoption of explicit medication-taking strategies. The setting and organisation of health care teams should allow for ongoing discussions with HIV-positive adolescents that focus on their perceptions of their disease, how they cope with it and with the treatment, and how they could improve their adherence.
Keywords
Adaptation, Psychological, Adolescent, Anti-HIV Agents/therapeutic use, Antiretroviral Therapy, Highly Active, Child, Cross-Sectional Studies, Data Collection, Female, HIV Infections/diagnosis, HIV Infections/epidemiology, Health Knowledge, Attitudes, Practice, Humans, Male, Medication Adherence, Patient Acceptance of Health Care, Patient Satisfaction, Perception, Qualitative Research, Stress, Psychological, Switzerland/epidemiology, Young Adult
Pubmed
Web of science
Create date
08/02/2010 15:23
Last modification date
20/08/2019 16:28
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