Need for patient-developed concepts of empowerment to rectify epistemic injustice and advance person-centred care
Details
Download: Bogaert Journal of Medical Ethics 2020.pdf (203.22 [Ko])
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State: Public
Version: author
License: Not specified
Serval ID
serval:BIB_DB573F7BDAF6
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Need for patient-developed concepts of empowerment to rectify epistemic injustice and advance person-centred care
Journal
Journal of Medical Ethics
ISSN
0306-6800
1473-4257
1473-4257
Publication state
Published
Issued date
12/2021
Peer-reviewed
Oui
Volume
47
Number
12
Pages
e15-e15
Language
english
Abstract
The dominant discourse in chronic disease management centres on the ideal of person-centred healthcare, with an empowered patient taking an active role in decision-making with their healthcare provider. Despite these encouraging developments toward healthcare democracy, many person-centred conceptions of healthcare and programming continue to focus on the healthcare institution's perspective and priorities. In these debates, the patient's voice has largely been absent. This article takes the example of patient empowerment to show how the concept has been influenced by a variety of competing and shifting influences that have led to conceptualisations and programming designed for the patient, but developed without the patient. The framework of epistemic injustice is proposed to unravel the complexity of these omissions. The concept can be defined as a wrong done to someone specifically in their capacity as a knower. It occurs when a person is ignored or not believed due to a prejudice of some kind. It has been applied to healthcare in order to better understand barriers for patient participation and will be used to better understand the problems with current empowerment definitions and implementation strategies. The article will end by proposing some methodologies to facilitate patient-developed concepts of empowerment.
Keywords
Health Policy, Arts and Humanities (miscellaneous), Issues, ethics and legal aspects, Health (social science)
Pubmed
Web of science
Create date
18/01/2024 11:40
Last modification date
19/01/2024 7:13