Swiss Adult Congenital HEart disease Registry (SACHER) - rationale, design and first results.

Détails

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Etat: Public
Version: de l'auteur
ID Serval
serval:BIB_CE39FC10297D
Type
Article: article d'un périodique ou d'un magazine.
Collection
Publications
Titre
Swiss Adult Congenital HEart disease Registry (SACHER) - rationale, design and first results.
Périodique
Swiss medical weekly
Auteur(s)
Tobler D., Schwerzmann M., Bouchardy J., Engel R., Stambach D., Attenhofer Jost C., Wustmann K., Schwitz F., Rutz T., Gabriel H., Kuen H.P., Auf der Maur C., Oxenius A., Seeliger T., Santos Lopes B., Bonassin F., Greutmann M.
Collaborateur(s)
On Behalf Of Sacher
ISSN
1424-3997 (Electronic)
ISSN-L
0036-7672
Statut éditorial
Publié
Date de publication
2017
Peer-reviewed
Oui
Volume
147
Pages
w14519
Langue
anglais
Notes
Publication types: Journal Article
Publication Status: epublish
Résumé
In 2013, a prospective registry for adults with congenital heart disease (CHD) was established in Switzerland, providing detailed data on disease characteristics and outcomes: Swiss Adult Congenital HEart disease Registry (SACHER). Its aim is to improve the knowledge base of outcomes in adults with CHD. The registry design and baseline patient characteristics are reported.
All patients with structural congenital heart defects or hereditary aortopathies, followed-up at dedicated adult CHD clinics, are asked to participate in SACHER. Data of participants are pseudonymised and collected in an electronic, web-based, database (secuTrial®). Collected data include detailed diagnosis, type of repair procedures, previous complications and adverse outcomes during follow-up.
From May 2014 to December 2016, 2836 patients (54% male, mean age 34 ± 14 years), with a wide variety of congenital heart lesions, have been enrolled into SACHER. Most prevalent were valve lesions (25%), followed by shunt lesions (22%), cyanotic and other complex congenital heart disease (16%), diseases affecting the right heart, i.e., tetralogy of Fallot or Ebstein anomaly (15%), and diseases of the left ventricular outflow tract (13%); 337 patients (12%) had concomitant congenital syndromes. The majority had undergone previous repair procedures (71%), 47% of those had one or more reinterventions.
SACHER collects multicentre data on adults with CHD. Its structure enables prospective data analysis to assess detailed, lesion-specific outcomes with the aim to finally improve long-term outcomes.
Mots-clé
Adult, Echocardiography/methods, Female, Heart Defects, Congenital/epidemiology, Heart Defects, Congenital/surgery, Humans, Male, Prevalence, Prospective Studies, Registries, Risk Factors, Switzerland
Pubmed
Web of science
Open Access
Oui
Création de la notice
22/11/2017 11:51
Dernière modification de la notice
20/08/2019 16:48
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