Parents living with HIV in a high-income country: do patients need specific support?

Détails

Ressource 1Télécharger: 18224495.pdf (172.88 [Ko])
Etat: Public
Version: Final published version
ID Serval
serval:BIB_CBE789E0E81B
Type
Article: article d'un périodique ou d'un magazine.
Collection
Publications
Titre
Parents living with HIV in a high-income country: do patients need specific support?
Périodique
Swiss medical weekly
Auteur(s)
Gredig D., Nideröst S., Rickenbach M.
Collaborateur(s)
Swiss HIV Cohort Study, Eurosupport Study Group
ISSN
1424-7860 (Print)
ISSN-L
0036-7672
Statut éditorial
Publié
Date de publication
26/01/2008
Peer-reviewed
Oui
Volume
138
Numéro
3-4
Pages
38-46
Langue
anglais
Notes
Publication types: Journal Article ; Research Support, Non-U.S. Gov't
Publication Status: ppublish
Résumé
The number of HIV-infected persons with children and caregiving duties is likely to increase. From this statement, the present study was designed to establish how HIV infected caregivers organise their parenting routines and to determine their support needs. A further aim was to ascertain caregivers' perception of conspicuous behaviours displayed by their children. Finally, it sought to determine the extent to which the caregivers' assessment of their parenting activity is influenced by the required support and their children's perceived conspicuous behaviours.
The study design was observational and cross-sectional. Sampling was based on the 7 HIV Outpatient Clinics associated with the national population-based Swiss HIV Cohort Study. It focused on persons living with HIV who are responsible for raising children below the age of 18. A total of 520 caregivers were approached and 261 participated. An anonymous, standardised, self-administered questionnaire was used for data collection. The data were analysed using descriptive statistical procedures and backward elimination multiple regression analysis.
The 261 respondents cared for 406 children and adolescents under 18 years of age; the median age was 10 years. The caregivers' material resources were low. 70% had a net family income in a range below the median of Swiss net family income and 30% were dependent on welfare assistance. 73% were undergoing treatment with 86% reporting no physical impairments. The proportion of single caregivers was 34%. 92% of the children were living with their HIV infected caregivers. 80% of the children attended an institution such as a school or kindergarten during the day. 89% of the caregivers had access to social networks providing support. Nevertheless, caregivers required additional support in performing their parenting duties and indicated a need for assistance on the material level, in connection with legal problems and with participation in the labour market. 46% of the caregivers had observed one or more conspicuous behaviours displayed by their children, which indicates a challenging situation. However, most of these caregivers assessed their parenting activity very favourably. Backward elimination multiple regression analysis indicated that a smaller number of support needs, younger age of the eldest child and fewer physical impairments on the part of the caregiver enhance the caregivers' assessment of their parenting activity.
Physicians should speak to caregivers living with HIV about their parenting responsibilities and provide the necessary scope for this subject in their consultation sessions. Physicians are in a position to draw their patients' attention to the services available to them.

Mots-clé
Adolescent, Adult, Child, Child Behavior, Child, Preschool, Cross-Sectional Studies, Female, HIV Infections/epidemiology, Humans, Income, Infant, Infant, Newborn, Male, Middle Aged, Needs Assessment, Parenting, Parents/psychology, Public Assistance/utilization, Social Support, Surveys and Questionnaires, Switzerland/epidemiology
Pubmed
Web of science
Création de la notice
26/02/2009 11:44
Dernière modification de la notice
20/08/2019 16:46
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