The Swiss French version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

Détails

ID Serval
serval:BIB_CAC1F0A9E8DD
Type
Article: article d'un périodique ou d'un magazine.
Collection
Publications
Titre
The Swiss French version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).
Périodique
Rheumatology international
Auteur(s)
Hofer M., von Scheven-Gête A., Santos M., Quartier P., Wouters C., Vanoni F., Saurenmann R.K., Consolaro A., Bovis F., Ruperto N.
Collaborateur(s)
Paediatric Rheumatology International Trials Organisation (PRINTO)
ISSN
1437-160X (Electronic)
ISSN-L
0172-8172
Statut éditorial
Publié
Date de publication
04/2018
Peer-reviewed
Oui
Volume
38
Numéro
Suppl 1
Pages
379-386
Langue
anglais
Notes
Publication types: Journal Article ; Multicenter Study ; Validation Studies
Publication Status: ppublish
Résumé
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Swiss French language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data, and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 98 JIA patients (3.1% systemic, 43.9% oligoarticular, 16.3% RF negative polyarthritis, 36.7% other categories), and 64 healthy children were enrolled in a paediatric rheumatology centre. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Swiss French version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
Mots-clé
Adolescent, Age of Onset, Arthritis, Juvenile/diagnosis, Arthritis, Juvenile/physiopathology, Arthritis, Juvenile/psychology, Arthritis, Juvenile/therapy, Case-Control Studies, Child, Child, Preschool, Cultural Characteristics, Disability Evaluation, Female, Health Status, Humans, Male, Parents/psychology, Patient Reported Outcome Measures, Patients/psychology, Predictive Value of Tests, Prognosis, Psychometrics, Quality of Life, Reproducibility of Results, Rheumatology/methods, Switzerland, Translating, Disease status, Functional ability, Health-related quality of life, JAMAR, Juvenile idiopathic arthritis
Pubmed
Web of science
Open Access
Oui
Création de la notice
14/04/2018 9:42
Dernière modification de la notice
09/05/2019 1:15
Données d'usage