Consensus-based recommendations for the management of juvenile dermatomyositis.

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Ressource 1Download: 329.full.pdf (1770.87 [Ko])
State: Public
Version: author
Serval ID
serval:BIB_C3D9D19C2AA3
Type
Article: article from journal or magazin.
Publication sub-type
Review (review): journal as complete as possible of one specific subject, written based on exhaustive analyses from published work.
Collection
Publications
Institution
Title
Consensus-based recommendations for the management of juvenile dermatomyositis.
Journal
Annals of the rheumatic diseases
Author(s)
Enders F.B., Bader-Meunier B., Baildam E., Constantin T., Dolezalova P., Feldman B.M., Lahdenne P., Magnusson B., Nistala K., Ozen S., Pilkington C., Ravelli A., Russo R., Uziel Y., van Brussel M., van der Net J., Vastert S., Wedderburn L.R., Wulffraat N., McCann L.J., van Royen-Kerkhof A.
ISSN
1468-2060 (Electronic)
ISSN-L
0003-4967
Publication state
Published
Issued date
02/2017
Peer-reviewed
Oui
Volume
76
Number
2
Pages
329-340
Language
english
Notes
Publication types: Journal Article
Publication Status: ppublish
Abstract
In 2012, a European initiative called Single Hub and Access point for pediatric Rheumatology in Europe (SHARE) was launched to optimise and disseminate diagnostic and management regimens in Europe for children and young adults with rheumatic diseases. Juvenile dermatomyositis (JDM) is a rare disease within the group of paediatric rheumatic diseases (PRDs) and can lead to significant morbidity. Evidence-based guidelines are sparse and management is mostly based on physicians' experience. Consequently, treatment regimens differ throughout Europe.
To provide recommendations for diagnosis and treatment of JDM.
Recommendations were developed by an evidence-informed consensus process using the European League Against Rheumatism standard operating procedures. A committee was constituted, consisting of 19 experienced paediatric rheumatologists and 2 experts in paediatric exercise physiology and physical therapy, mainly from Europe. Recommendations derived from a validated systematic literature review were evaluated by an online survey and subsequently discussed at two consensus meetings using nominal group technique. Recommendations were accepted if >80% agreement was reached.
In total, 7 overarching principles, 33 recommendations on diagnosis and 19 recommendations on therapy were accepted with >80% agreement among experts. Topics covered include assessment of skin, muscle and major organ involvement and suggested treatment pathways.
The SHARE initiative aims to identify best practices for treatment of patients suffering from PRD. Within this remit, recommendations for the diagnosis and treatment of JDM have been formulated by an evidence-informed consensus process to produce a standard of care for patients with JDM throughout Europe.

Pubmed
Web of science
Open Access
Yes
Create date
20/02/2017 17:20
Last modification date
20/08/2019 15:39
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