Consensus-based recommendations for the management of juvenile dermatomyositis.

Détails

Ressource 1Télécharger: 329.full.pdf (1770.87 [Ko])
Etat: Serval
Version: de l'auteur
ID Serval
serval:BIB_C3D9D19C2AA3
Type
Article: article d'un périodique ou d'un magazine.
Sous-type
Synthèse (review): revue aussi complète que possible des connaissances sur un sujet, rédigée à partir de l'analyse exhaustive des travaux publiés.
Collection
Publications
Titre
Consensus-based recommendations for the management of juvenile dermatomyositis.
Périodique
Annals of the rheumatic diseases
Auteur(s)
Enders F.B., Bader-Meunier B., Baildam E., Constantin T., Dolezalova P., Feldman B.M., Lahdenne P., Magnusson B., Nistala K., Ozen S., Pilkington C., Ravelli A., Russo R., Uziel Y., van Brussel M., van der Net J., Vastert S., Wedderburn L.R., Wulffraat N., McCann L.J., van Royen-Kerkhof A.
ISSN
1468-2060 (Electronic)
ISSN-L
0003-4967
Statut éditorial
Publié
Date de publication
02/2017
Peer-reviewed
Oui
Volume
76
Numéro
2
Pages
329-340
Langue
anglais
Notes
Publication types: Journal Article
Publication Status: ppublish
Résumé
In 2012, a European initiative called Single Hub and Access point for pediatric Rheumatology in Europe (SHARE) was launched to optimise and disseminate diagnostic and management regimens in Europe for children and young adults with rheumatic diseases. Juvenile dermatomyositis (JDM) is a rare disease within the group of paediatric rheumatic diseases (PRDs) and can lead to significant morbidity. Evidence-based guidelines are sparse and management is mostly based on physicians' experience. Consequently, treatment regimens differ throughout Europe.
To provide recommendations for diagnosis and treatment of JDM.
Recommendations were developed by an evidence-informed consensus process using the European League Against Rheumatism standard operating procedures. A committee was constituted, consisting of 19 experienced paediatric rheumatologists and 2 experts in paediatric exercise physiology and physical therapy, mainly from Europe. Recommendations derived from a validated systematic literature review were evaluated by an online survey and subsequently discussed at two consensus meetings using nominal group technique. Recommendations were accepted if >80% agreement was reached.
In total, 7 overarching principles, 33 recommendations on diagnosis and 19 recommendations on therapy were accepted with >80% agreement among experts. Topics covered include assessment of skin, muscle and major organ involvement and suggested treatment pathways.
The SHARE initiative aims to identify best practices for treatment of patients suffering from PRD. Within this remit, recommendations for the diagnosis and treatment of JDM have been formulated by an evidence-informed consensus process to produce a standard of care for patients with JDM throughout Europe.

Pubmed
Web of science
Création de la notice
20/02/2017 18:20
Dernière modification de la notice
03/03/2018 21:12
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