The state of transience, and its influence on the wish to die of advanced disease patients: insights from a qualitative phenomenological study.
Details
Serval ID
serval:BIB_B27F48606510
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
The state of transience, and its influence on the wish to die of advanced disease patients: insights from a qualitative phenomenological study.
Journal
BMC palliative care
ISSN
1472-684X (Electronic)
ISSN-L
1472-684X
Publication state
Published
Issued date
26/02/2024
Peer-reviewed
Oui
Volume
23
Number
1
Pages
57
Language
english
Notes
Publication types: Multicenter Study ; Journal Article
Publication Status: epublish
Publication Status: epublish
Abstract
The experience of Wish to Die is common in patients living with Advanced Disease. It has been studied worldwide and qualitative studies have contributed to the understanding of the complexity of the phenomenon of the WTD but a deeper understanding on the individual's views is still needed. The objective of this study was to identify common characteristics of the experience of wish to die in advanced disease.
A phenomenological study was carried out with multicenter participation of patients with advanced disease who had expressed their wish to die to health professionals. Semi-structured interviews were employed to obtain an in-depth perspective of each patient's lived experience. A phenomenological analysis of the data collected was performed to describe and explore the characteristic aspects of the phenomenon under study.
Fourteen patients with advanced disease were interviewed. Most of them had cancer. In the analysis of the patients' accounts of their experiences, three common characteristics were identified: a) experiencing a state of transience; b) the attempt to reconnect with oneself; and c) additional disease-related aspects that influence the wish to die. Patients expressed the need for a safe space to address the wish to die and the importance of receiving care that considers both 'being' and 'doing'.
Patients with advanced disease and wish to die experience a state of transience where the patient lives and ephemeral state of existence. Interventions focused on reinforcing the intrinsic value of the individual emerge as essential components of a compassionate accompaniment of those facing the wish to die.
A phenomenological study was carried out with multicenter participation of patients with advanced disease who had expressed their wish to die to health professionals. Semi-structured interviews were employed to obtain an in-depth perspective of each patient's lived experience. A phenomenological analysis of the data collected was performed to describe and explore the characteristic aspects of the phenomenon under study.
Fourteen patients with advanced disease were interviewed. Most of them had cancer. In the analysis of the patients' accounts of their experiences, three common characteristics were identified: a) experiencing a state of transience; b) the attempt to reconnect with oneself; and c) additional disease-related aspects that influence the wish to die. Patients expressed the need for a safe space to address the wish to die and the importance of receiving care that considers both 'being' and 'doing'.
Patients with advanced disease and wish to die experience a state of transience where the patient lives and ephemeral state of existence. Interventions focused on reinforcing the intrinsic value of the individual emerge as essential components of a compassionate accompaniment of those facing the wish to die.
Keywords
Humans, Attitude to Death, Patients, Empathy, Qualitative Research, Desire to die, Living experience, Phenomenological approach, Qualitative research, Wish to die
Pubmed
Web of science
Open Access
Yes
Create date
01/03/2024 13:35
Last modification date
09/08/2024 15:04