A Pilgrim's Journey-When Parkinson's Disease Comes to an End in Nursing Homes.

Détails

Ressource 1Télécharger: 30619034_BIB_A8FAC04CB617.pdf (503.20 [Ko])
Etat: Public
Version: Final published version
Licence: CC BY 4.0
ID Serval
serval:BIB_A8FAC04CB617
Type
Article: article d'un périodique ou d'un magazine.
Collection
Publications
Titre
A Pilgrim's Journey-When Parkinson's Disease Comes to an End in Nursing Homes.
Périodique
Frontiers in neurology
Auteur(s)
Lex K.M., Larkin P., Osterbrink J., Lorenzl S.
ISSN
1664-2295 (Print)
ISSN-L
1664-2295
Statut éditorial
Publié
Date de publication
2018
Peer-reviewed
Oui
Volume
9
Pages
1068
Langue
anglais
Notes
Publication types: Journal Article
Publication Status: epublish
Résumé
Our interdisciplinary mixed-methods exploratory study was aimed at gaining empirical data on the medical and nursing demands of residents who are in a late stage of Parkinson Disease (PD) and are cared for in residential homes in Salzburg (Austria). In earlier studies it has been concluded that symptom burden of late stage PD patients is similar to or even higher compared with oncological patients. However, although all nine residents who took part in our study had severe limitations in performing their daily activities and experienced enormous restrictions in their mobility, they were quite content with their present living situations and did not show significant symptom burden. From the ethnographic family interviews that we conducted the following features emerged: a strong closeness in the family, an improved quality of life when the patients lived in the nursing home and fears about the future. Therefore, we concluded that living in a nursing home that provides for the needs of these patients is the best option for PD patients in the final stages of their disease as well as for their relatives.
Mots-clé
Neurology, Clinical Neurology, assessments, ethnographic interview, morbus Parkinson, nursing homes, palliative care needs
Pubmed
Web of science
Open Access
Oui
Création de la notice
03/01/2019 11:18
Dernière modification de la notice
20/08/2019 15:13
Données d'usage