Precision or narrative medicine? Child neurology needs both!

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License: CC BY 4.0
Serval ID
serval:BIB_92FFF2BD3B1C
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Precision or narrative medicine? Child neurology needs both!
Journal
Archives de pediatrie
Author(s)
Roulet Perez E.
ISSN
1769-664X (Electronic)
ISSN-L
0929-693X
Publication state
Published
Issued date
08/2023
Peer-reviewed
Oui
Volume
30
Number
6
Pages
415-419
Language
english
Notes
Publication types: Journal Article
Publication Status: ppublish
Abstract
Precision medicine aims to understand the mechanisms of diseases and to find treatments adapted to each individual or group of patients, on the basis of biological characteristics and environment. It uses new tools based on digital technologies. Narrative medicine was theorized, in the 2000s, as a reaction to the increasing technicality and the notion of a lack of human relations in care: It focuses on recognizing the essential place of the patient's experience of illness and life history in the diagnosis and management of diseases as well as in the training of caregivers. These two opposite currents are rarely considered together. In fact, they have in common the basic principle that each patient is unique, and both are often more closely intertwined than we think, especially in the field of child neurology. Five case histories and discussions presented here aim to demonstrate that combining the precision approach with the narrative approach can improve the diagnosis, treatment, classification, and understanding of neurological conditions, as well as enhance the dialog with families and make teaching more meaningful. Not only rare diseases but common problems, such as paroxysmal events, pain, epilepsy, intellectual disability, and autism spectrum disorder, are addressed from both perspectives.
Keywords
Humans, Child, Narrative Medicine, Autism Spectrum Disorder/diagnosis, Autism Spectrum Disorder/therapy, Caregivers, Pain, Neurology, Autism, Child neurology, Narrative medicine, Out-of-body experience, Paroxysmal extreme pain disorder, Precision medicine
Pubmed
Web of science
Open Access
Yes
Create date
13/07/2023 14:15
Last modification date
19/12/2023 8:23
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