Hemophilia Registry of the Medical Committee of the Swiss Hemophilia Society: Update and Annual Survey 2008.

Détails

ID Serval
serval:BIB_8FB1B0805313
Type
Article: article d'un périodique ou d'un magazine.
Collection
Publications
Titre
Hemophilia Registry of the Medical Committee of the Swiss Hemophilia Society: Update and Annual Survey 2008.
Périodique
Hämostaseologie
Auteur(s)
Brand B., von der Weid N.
ISSN
0720-9355
Statut éditorial
Publié
Date de publication
2009
Peer-reviewed
Oui
Volume
29
Numéro
Suppl. 1
Pages
16-18
Langue
anglais
Résumé
The Swiss Haemophilia Registry of the Medical Committee of the Swiss Haemophilia Society was established in 2000. Primarily it bears epidemiological and basic clinical data (incidence, type and severity of the disease, age groups, centres, mortality). Two thirds of the questions of the WFH Global Survey can be answered, especially those concerning use of concentrates (global, per capita) and treatment modalities (on-demand versus prophylactic regimens). Moreover, the registry is an important tool for quality control of the haemophilia treatment centres. There are no informations about infectious diseases like hepatitis or HIV, due to non-anonymisation of the data. We plan to incorporate the results of the mutation analysis in the future.
Mots-clé
Adult, Blood Coagulation Disorders/*epidemiology/mortality/therapy, Blood Coagulation Factors/therapeutic use, Databases, Factual/standards, Humans, Infant, Newborn, Quality Control, *Registries/standards, Societies, Medical, Switzerland/epidemiology
Pubmed
Web of science
Création de la notice
14/01/2010 20:03
Dernière modification de la notice
03/03/2018 19:22
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