Banking on Participation: Exploring the Co-production of Population and Public in Swiss Biobanking

Details

Serval ID
serval:BIB_79C8DC8CDC9B
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Banking on Participation: Exploring the Co-production of Population and Public in Swiss Biobanking
Journal
Tecnoscienza Italian Journal of Science & Technology Studies
Author(s)
Bühler Nolwenn, Barazzetti Gaia, Kaufmann Alain
ISSN
2038-3460
Publication state
Published
Issued date
2018
Peer-reviewed
Oui
Volume
9
Number
2
Pages
109-132
Language
english
Abstract
This paper explores enactments of participation in two Swiss bi- obanking configurations, a cohort biobank and a general biobank. It sheds light on the role of Personalized Health endeavours, in which biobanks play a crucial role. In order to contribute to the understanding of the role of par- ticipation in biomedical research dynamics, the analysis focuses on the pro- cesses of co-production of identity and biobanks (Tupasela et al. 2015). It documents the overlaps between the population – providers of biological samples – and the public, the collective who is expected to give its opinion on issues raised by the reconfiguration of the research/healthcare interface. It shows that modalities of participation impact the potential scientific value derived from the biobank’s population, but also that the reconfiguration of the research/healthcare interface at the core of biobanking contributes to the current blooming of discourses and practices of participation. It argues that the forms of collective identity shaped through participation as popula- tion and/or public, exceed formal strategies of participatory governance and may play an even more important role in the shaping of biobanking configu- rations.
Keywords
biobanks, public participation, biosociality, personalized health, genomic research.
Create date
04/02/2019 23:59
Last modification date
21/02/2024 8:16
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