The Swiss Childhood Cancer Registry: rationale, organisation and results for the years 2001-2005.
Details
State: Public
Version: Final published version
Serval ID
serval:BIB_52002F1CF015
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
The Swiss Childhood Cancer Registry: rationale, organisation and results for the years 2001-2005.
Journal
Swiss medical weekly
Working group(s)
Swiss Childhood Cancer Registry, Swiss Paediatric Oncology Group (SPOG) Scientific Committee
ISSN
1424-7860 (Print)
ISSN-L
0036-7672
Publication state
Published
Issued date
08/09/2007
Peer-reviewed
Oui
Volume
137
Number
35-36
Pages
502-509
Language
english
Notes
Publication types: Journal Article ; Research Support, Non-U.S. Gov't
Publication Status: ppublish
Publication Status: ppublish
Abstract
Childhood cancer is a rare but severe disease. Therefore central registration of all cases is essential for surveillance and management. This paper describes the methodology and basic results of the Swiss Childhood Cancer Registry (SCCR).
The SCCR was established in 1976, originally as a national hospital-based registry of childhood malignancies. All 9 paediatric oncology-haematology clinics in Switzerland provide baseline and follow-up information on all children diagnosed with cancer. These data are registered centrally and diagnoses are coded according to the International Classification of Childhood Cancer.
From 2001-2005, 887 cases of childhood cancer in Swiss residents under the age of 15 years were registered in the SCCR. Of these, 281 (31.7%) were leukaemias, 223 (24.0%) were CNS tumours, and 116 (13.1%) were lymphomas. The age-standardised annual incidence per 1 Million person-years (age below 15 years; world standardisation) was 154.0 (95% CI 143.7-164.3; N = 887). The incidence was higher for boys (170.2, 155.0-185.4; N = 501) than for girls (136.9, 123.0-150.8; N = 386).
The close collaboration between all paediatric oncologists-haematologists in Switzerland and a university department allowed the creation of a national population-based cancer registry with detailed clinical information. The SCCR produces cancer type specific incidence and survival estimates and allows the development of nested research projects on childhood cancer aetiology, management and outcome, both on a national and on an international level.
The SCCR was established in 1976, originally as a national hospital-based registry of childhood malignancies. All 9 paediatric oncology-haematology clinics in Switzerland provide baseline and follow-up information on all children diagnosed with cancer. These data are registered centrally and diagnoses are coded according to the International Classification of Childhood Cancer.
From 2001-2005, 887 cases of childhood cancer in Swiss residents under the age of 15 years were registered in the SCCR. Of these, 281 (31.7%) were leukaemias, 223 (24.0%) were CNS tumours, and 116 (13.1%) were lymphomas. The age-standardised annual incidence per 1 Million person-years (age below 15 years; world standardisation) was 154.0 (95% CI 143.7-164.3; N = 887). The incidence was higher for boys (170.2, 155.0-185.4; N = 501) than for girls (136.9, 123.0-150.8; N = 386).
The close collaboration between all paediatric oncologists-haematologists in Switzerland and a university department allowed the creation of a national population-based cancer registry with detailed clinical information. The SCCR produces cancer type specific incidence and survival estimates and allows the development of nested research projects on childhood cancer aetiology, management and outcome, both on a national and on an international level.
Keywords
Adolescent, Child, Child Welfare, Child, Preschool, Female, Humans, Incidence, Infant, Infant, Newborn, Male, Neoplasms/epidemiology, Neoplasms/mortality, Neoplasms, Germ Cell and Embryonal/epidemiology, Neoplasms, Germ Cell and Embryonal/etiology, Population Groups, Registries, Retrospective Studies, Risk Assessment, Survival, Switzerland/epidemiology
Pubmed
Web of science
Create date
12/02/2008 9:45
Last modification date
20/08/2019 15:07