A consensus review on the development of palliative care for patients with chronic and progressive neurological disease.

Details

Serval ID
serval:BIB_45443F3B0EA8
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
A consensus review on the development of palliative care for patients with chronic and progressive neurological disease.
Journal
European Journal of Neurology
Author(s)
Oliver D.J., Borasio G.D., Caraceni A., de Visser M., Grisold W., Lorenzl S., Veronese S., Voltz R.
ISSN
1468-1331 (Electronic)
ISSN-L
1351-5101
Publication state
Published
Issued date
2016
Peer-reviewed
Oui
Volume
23
Number
1
Pages
30-38
Language
english
Abstract
BACKGROUND AND PURPOSE: The European Association of Palliative Care Taskforce, in collaboration with the Scientific Panel on Palliative Care in Neurology of the European Federation of Neurological Societies (now the European Academy of Neurology), aimed to undertake a review of the literature to establish an evidence-based consensus for palliative and end of life care for patients with progressive neurological disease, and their families.
METHODS: A search of the literature yielded 942 articles on this area. These were reviewed by two investigators to determine the main areas and the subsections. A draft list of papers supporting the evidence for each area was circulated to the other authors in an iterative process leading to the agreed recommendations.
RESULTS: Overall there is limited evidence to support the recommendations but there is increasing evidence that palliative care and a multidisciplinary approach to care do lead to improved symptoms (Level B) and quality of life of patients and their families (Level C). The main areas in which consensus was found and recommendations could be made are in the early integration of palliative care (Level C), involvement of the wider multidisciplinary team (Level B), communication with patients and families including advance care planning (Level C), symptom management (Level B), end of life care (Level C), carer support and training (Level C), and education for all professionals involved in the care of these patients and families (Good Practice Point).
CONCLUSIONS: The care of patients with progressive neurological disease and their families continues to improve and develop. There is a pressing need for increased collaboration between neurology and palliative care.
Pubmed
Web of science
Create date
19/02/2016 18:39
Last modification date
20/08/2019 13:50
Usage data