White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care.

Details

Serval ID
serval:BIB_34072536364A
Type
Article: article from journal or magazin.
Collection
Publications
Title
White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care.
Journal
Palliative medicine
Author(s)
van der Steen J.T., Radbruch L., Hertogh C.M., de Boer M.E., Hughes J.C., Larkin P., Francke A.L., Jünger S., Gove D., Firth P., Koopmans R.T., Volicer L.
Working group(s)
European Association for Palliative Care (EAPC)
ISSN
1477-030X (Electronic)
ISSN-L
0269-2163
Publication state
Published
Issued date
03/2014
Peer-reviewed
Oui
Volume
28
Number
3
Pages
197-209
Language
english
Notes
Publication types: Journal Article ; Research Support, Non-U.S. Gov't
Publication Status: ppublish
Abstract
Dementia is a life-limiting disease without curative treatments. Patients and families may need palliative care specific to dementia.
To define optimal palliative care in dementia.
Five-round Delphi study. Based on literature, a core group of 12 experts from 6 countries drafted a set of core domains with salient recommendations for each domain. We invited 89 experts from 27 countries to evaluate these in a two-round online survey with feedback. Consensus was determined according to predefined criteria. The fourth round involved decisions by the core team, and the fifth involved input from the European Association for Palliative Care.
A total of 64 (72%) experts from 23 countries evaluated a set of 11 domains and 57 recommendations. There was immediate and full consensus on the following eight domains, including the recommendations: person-centred care, communication and shared decision-making; optimal treatment of symptoms and providing comfort (these two identified as central to care and research); setting care goals and advance planning; continuity of care; psychosocial and spiritual support; family care and involvement; education of the health care team; and societal and ethical issues. After revision, full consensus was additionally reached for prognostication and timely recognition of dying. Recommendations on nutrition and dehydration (avoiding overly aggressive, burdensome or futile treatment) and on dementia stages in relation to care goals (applicability of palliative care) achieved moderate consensus.
We have provided the first definition of palliative care in dementia based on evidence and consensus, a framework to provide guidance for clinical practice, policy and research.
Keywords
Adult, Aged, Aged, 80 and over, Consensus, Delphi Technique, Dementia/therapy, Europe, Humans, Middle Aged, Palliative Care/standards, Practice Guidelines as Topic, Comfort care, consensus, dementia, end of life, guidelines, palliative care
Pubmed
Web of science
Open Access
Yes
Create date
13/02/2019 14:37
Last modification date
20/08/2019 13:20
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