The unspoken disease: symptom experience in women with vulval neoplasia and surgical treatment: a qualitative study.

Détails

ID Serval
serval:BIB_32A691FA5DC4
Type
Article: article d'un périodique ou d'un magazine.
Collection
Publications
Titre
The unspoken disease: symptom experience in women with vulval neoplasia and surgical treatment: a qualitative study.
Périodique
European journal of cancer care
Auteur(s)
Senn B., Gafner D., Happ M.B., Eicher M., Mueller M.D., Engberg S., Spirig R.
ISSN
1365-2354 (Electronic)
ISSN-L
0961-5423
Statut éditorial
Publié
Date de publication
11/2011
Peer-reviewed
Oui
Volume
20
Numéro
6
Pages
747-758
Langue
anglais
Notes
Publication types: Journal Article ; Research Support, Non-U.S. Gov't
Publication Status: ppublish
Résumé
Women with vulval neoplasia often experience severe post-surgical complications. This study focuses on symptom experience of women during the first 6 months following surgical treatment for vulval neoplasia considering their socio-cultural context. In this qualitative study using a critical hermeneutic approach, narrative interviews were conducted. A purposeful sample of 20 patients was recruited from one Swiss and two German university hospitals. Content analysis was employed to analyse the transcribed interviews considering women's experiences and social perceptions. Narratives showed eight interrelated themes: delayed diagnosis, disclosed disease, disturbed self-image, changed vulva care, experienced wound-related symptoms, evoked emotions, affected interpersonal interactions and feared illness progression. The women experienced a general lack of information pertaining to above themes and all described strategies used to handle their situation, which affected their distress. The communication, assessment and treatment of symptoms were hampered by the society's and the health system's tendency to overlook these symptoms and leave them in the realm of the unspeakable. Health professionals need new strategies to support these women to recognise, assess and evaluate the seriousness of symptoms, and to communicate their symptom experience so that timely medical treatment is sought. This support may minimise potentially preventable complications and symptom-related distress.
Mots-clé
Adult, Aged, Delayed Diagnosis/psychology, Fear, Female, Germany, Humans, Interpersonal Relations, Middle Aged, Patient Satisfaction, Qualitative Research, Self Care, Self Concept, Switzerland, Vulvar Neoplasms/psychology, Vulvar Neoplasms/surgery
Pubmed
Web of science
Création de la notice
07/02/2019 12:54
Dernière modification de la notice
20/08/2019 14:18
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