Physicians' attitudes towards ethical issues and end-of-life decision-making for pediatric patients with unresponsive wakefulness syndrome: An international survey.

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State: Public
Version: Final published version
License: CC BY-NC 4.0
Serval ID
serval:BIB_140BC762949C
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Physicians' attitudes towards ethical issues and end-of-life decision-making for pediatric patients with unresponsive wakefulness syndrome: An international survey.
Journal
Developmental medicine and child neurology
Author(s)
Schembs L., Racine E., Shevell M., Jox R.J.
ISSN
1469-8749 (Electronic)
ISSN-L
0012-1622
Publication state
Published
Issued date
12/2023
Peer-reviewed
Oui
Volume
65
Number
12
Pages
1646-1655
Language
english
Notes
Publication types: Journal Article
Publication Status: ppublish
Abstract
We examined physicians' perspectives on the mental capabilities of pediatric patients with unresponsive wakefulness syndrome (UWS) and their attitudes towards limiting life-sustaining treatment (LST) in an international context.
A questionnaire survey was conducted among 267 neuropediatricians, practicing in 65 countries. Comparisons were made according to the Human Development Index (HDI) of the countries. The Idler Index of Religiosity was applied to determine religiosity.
Participants from countries with a very high HDI were generally more favorable to limiting LST (p < 0.001), specifically cardiopulmonary resuscitation (p = 0.021), intubation/ventilation (p = 0.014), hemodialysis/hemofiltration (p < 0.001), and antibiotic therapy (p < 0.001). Treatment costs that were too high had a weaker influence on their decisions (p < 0.001). Participants who found it never ethically justifiable to limit LST had a higher mean Idler Index of private (p = 0.001) and general (p = 0.020) religiosity and were less satisfied with treatment decisions (p < 0.001) and the communication during the process (p = 0.016).
The perspectives towards limiting LST for pediatric patients with UWS are markedly different between physicians from countries with very high and lower HDIs.
Keywords
Humans, Child, Wakefulness, Physicians, Surveys and Questionnaires, Communication, Death, Decision Making, Terminal Care
Pubmed
Web of science
Open Access
Yes
Create date
03/03/2023 16:52
Last modification date
03/02/2024 8:16
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