Future policy and research for advance care planning in dementia: consensus recommendations from an international Delphi panel of the European Association for Palliative Care.

Détails

Ressource 1Télécharger: 38608695.pdf (265.53 [Ko])
Etat: Public
Version: Final published version
Licence: CC BY 4.0
ID Serval
serval:BIB_7EBF9A47370B
Type
Article: article d'un périodique ou d'un magazine.
Collection
Publications
Institution
Titre
Future policy and research for advance care planning in dementia: consensus recommendations from an international Delphi panel of the European Association for Palliative Care.
Périodique
The lancet. Healthy longevity
Auteur⸱e⸱s
Nakanishi M., Martins Pereira S., Van den Block L., Parker D., Harrison-Dening K., Di Giulio P., In der Schmitten J., Larkin P.J., Mimica N., Sudore R.L., Holmerová I., Korfage I.J., van der Steen J.T.
Collaborateur⸱rice⸱s
European Association for Palliative Care
ISSN
2666-7568 (Electronic)
ISSN-L
2666-7568
Statut éditorial
Publié
Date de publication
05/2024
Peer-reviewed
Oui
Volume
5
Numéro
5
Pages
e370-e378
Langue
anglais
Notes
Publication types: Journal Article ; Research Support, Non-U.S. Gov't
Publication Status: ppublish
Résumé
Advance care planning (ACP) is increasingly recognised in the global agenda for dementia care. The European Association for Palliative Care (EAPC) Taskforce on ACP in Dementia aimed to provide recommendations for policy initiatives and future research. We conducted a four-round Delphi study with a 33-country panel of 107 experts between September, 2021, and June, 2022, that was approved by the EAPC Board. Consensus was achieved on 11 recommendations concerning the regulation of advance directives, equity of access, and dementia-inclusive approaches and conversations to express patients' values. Identified research gaps included the need for an evidence-based dementia-specific practice model that optimises engagement and communication with people with fluctuating and impaired capacity and their families to support decision making, while also empowering people to adjust their decisions if their goals or preferences change over time. Policy gaps included insufficient health services frameworks for dementia-inclusive practice. The results highlight the need for more evidence and policy development that support inclusive ACP practice models.
Mots-clé
Humans, Advance Care Planning/organization & administration, Advance Directives, Consensus, Delphi Technique, Dementia/therapy, Europe, Health Policy, Palliative Care
Pubmed
Open Access
Oui
Création de la notice
19/04/2024 9:08
Dernière modification de la notice
11/05/2024 8:58
Données d'usage