Future policy and research for advance care planning in dementia: consensus recommendations from an international Delphi panel of the European Association for Palliative Care.

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State: Public
Version: Final published version
License: CC BY 4.0
Serval ID
serval:BIB_7EBF9A47370B
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Future policy and research for advance care planning in dementia: consensus recommendations from an international Delphi panel of the European Association for Palliative Care.
Journal
The lancet. Healthy longevity
Author(s)
Nakanishi M., Martins Pereira S., Van den Block L., Parker D., Harrison-Dening K., Di Giulio P., In der Schmitten J., Larkin P.J., Mimica N., Sudore R.L., Holmerová I., Korfage I.J., van der Steen J.T.
Working group(s)
European Association for Palliative Care
ISSN
2666-7568 (Electronic)
ISSN-L
2666-7568
Publication state
Published
Issued date
05/2024
Peer-reviewed
Oui
Volume
5
Number
5
Pages
e370-e378
Language
english
Notes
Publication types: Journal Article ; Research Support, Non-U.S. Gov't
Publication Status: ppublish
Abstract
Advance care planning (ACP) is increasingly recognised in the global agenda for dementia care. The European Association for Palliative Care (EAPC) Taskforce on ACP in Dementia aimed to provide recommendations for policy initiatives and future research. We conducted a four-round Delphi study with a 33-country panel of 107 experts between September, 2021, and June, 2022, that was approved by the EAPC Board. Consensus was achieved on 11 recommendations concerning the regulation of advance directives, equity of access, and dementia-inclusive approaches and conversations to express patients' values. Identified research gaps included the need for an evidence-based dementia-specific practice model that optimises engagement and communication with people with fluctuating and impaired capacity and their families to support decision making, while also empowering people to adjust their decisions if their goals or preferences change over time. Policy gaps included insufficient health services frameworks for dementia-inclusive practice. The results highlight the need for more evidence and policy development that support inclusive ACP practice models.
Keywords
Humans, Advance Care Planning/organization & administration, Advance Directives, Consensus, Delphi Technique, Dementia/therapy, Europe, Health Policy, Palliative Care
Pubmed
Open Access
Yes
Create date
19/04/2024 9:08
Last modification date
11/05/2024 8:58
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