Hemophilia Registry of the Medical Committee of the Swiss Hemophilia Society: Update and Annual Survey 2008.

Details

Serval ID
serval:BIB_8FB1B0805313
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Hemophilia Registry of the Medical Committee of the Swiss Hemophilia Society: Update and Annual Survey 2008.
Journal
Hämostaseologie
Author(s)
Brand B., von der Weid N.
ISSN
0720-9355
Publication state
Published
Issued date
2009
Peer-reviewed
Oui
Volume
29
Number
Suppl. 1
Pages
16-18
Language
english
Abstract
The Swiss Haemophilia Registry of the Medical Committee of the Swiss Haemophilia Society was established in 2000. Primarily it bears epidemiological and basic clinical data (incidence, type and severity of the disease, age groups, centres, mortality). Two thirds of the questions of the WFH Global Survey can be answered, especially those concerning use of concentrates (global, per capita) and treatment modalities (on-demand versus prophylactic regimens). Moreover, the registry is an important tool for quality control of the haemophilia treatment centres. There are no informations about infectious diseases like hepatitis or HIV, due to non-anonymisation of the data. We plan to incorporate the results of the mutation analysis in the future.
Keywords
Adult, Blood Coagulation Disorders/*epidemiology/mortality/therapy, Blood Coagulation Factors/therapeutic use, Databases, Factual/standards, Humans, Infant, Newborn, Quality Control, *Registries/standards, Societies, Medical, Switzerland/epidemiology
Pubmed
Web of science
Create date
14/01/2010 20:03
Last modification date
20/08/2019 15:53
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