serval:BIB_AC0D6BF96093
Detached, distraught or discerning? Fathers of adolescents with chronic illness: a review of the literature.
10.1515/ijamh-2013-0018
23314519
Goldstein
Henry
author
Akré
Christina
author
Bélanger Richard
E.
author
Suris
Joan-Carles
author
article
review
2013
International Journal of Adolescent Medicine and Health
0334-0139
0334-0139
journal
25
2
109-117
Abstract Parenting a child with chronic disease provides a unique set of challenges for both mothers and fathers throughout all phases of the illness. However, fathers of these children are under-represented in existing research. This review focuses on the fathers of children with chronic disease included in 44 original articles. We address the challenges to the father's role as breadwinner, leader and strength-giver in the family. Three time-periods describe the obstacles fathers tackle when parenting children with chronic disease: a) diagnosis and short-term, characterized by distress, isolation and uncertainty; b) the mastery period, characterized by the struggle to establish routine and by support and spirituality; and c) the long-term, characterized by relationship and personality change, worries and bereavement. Overall, whilst current research has revealed some key themes pertaining to fathers of children with chronic disease, further studies are required to foster the development of support mechanisms for the specific needs of these fathers.
eng
60_published
true
Publication types: Journal Article Publication Status: ppublish
University of Lausanne
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