Maladies et incapacites, allocations et modes de transports: correlations chez les membres d'une association de patients avec maladies neuromusculaires. Pour l'Association Suisse Romande contre la Myopathie. [Correlation of diseases and disabilities and allocation and modes of transport among the members of an association of patients with neuromuscular diseases. For the Association Suisse Romande contre la Myopathie]

Détails

ID Serval
serval:BIB_879EE363BCA3
Type
Article: article d'un périodique ou d'un magazine.
Collection
Publications
Titre
Maladies et incapacites, allocations et modes de transports: correlations chez les membres d'une association de patients avec maladies neuromusculaires. Pour l'Association Suisse Romande contre la Myopathie. [Correlation of diseases and disabilities and allocation and modes of transport among the members of an association of patients with neuromuscular diseases. For the Association Suisse Romande contre la Myopathie]
Périodique
Revue Médicale de la Suisse Romande
Auteur(s)
Kuntzer  T., Baume  F., Bozzio  D., Joray  Y., Bujard  M., Piguet  L., Bozzio  Y.
ISSN
0035-3655 (Print)
Statut éditorial
Publié
Date de publication
09/2000
Peer-reviewed
Oui
Volume
120
Numéro
9
Pages
755-9
Notes
English Abstract Journal Article --- Old month value: Sep
Résumé
Seventy-nine patients with various chronic neuromuscular disorders returned a questionnaire. We analyzed the linkage between demographic and socio-economic data, type of disease and disability, and types of transportation used. This study shows that whatever type of disability, all patients attach a significant priority to the use of their private vehicle, and that (i) there is a significant correlation between severity of disability and use of disabled people transportation system but not with revenue nor with type of professional activity, and (ii) satisfaction rate is inversely proportional to severity of disability. The relationship between disability and disabled people transportation system appears as logical, but those between revenue and type of transportation is rather complex (role of family, of special refunds from insurance industry, possibility of special loans from the patient organization). The absence of correlation between severity of disability and professional activity must be explained by our choice concerning the scale of disability, which appears too simplistic according to the complexity of the different neuromuscular disorders. It is concluded that (i) co-operation and consultation are needed to give patients better access to disabled people transportation system and to improve technical aids to drive private vehicle and (ii) a more appropriated scale to quantitate disability in neuromuscular disorder patients is needed.
Mots-clé
Adolescent Adult Aged Child Child, Preschool Disability Evaluation *Disabled Persons Humans Middle Aged Neuromuscular Diseases/*rehabilitation Occupations Patient Satisfaction Questionnaires Self-Help Groups Socioeconomic Factors Transportation/*methods
Pubmed
Création de la notice
25/01/2008 13:43
Dernière modification de la notice
03/03/2018 19:02
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