Children's at Home: Dedicated Social Media for Parents of Adolescents With Neurofibromatosis Type 1
Details
Serval ID
serval:BIB_275DA41EE3FD
Type
Inproceedings: an article in a conference proceedings.
Publication sub-type
Abstract (Abstract): shot summary in a article that contain essentials elements presented during a scientific conference, lecture or from a poster.
Collection
Publications
Institution
Title
Children's at Home: Dedicated Social Media for Parents of Adolescents With Neurofibromatosis Type 1
Title of the conference
Journal of Adolescent Health
Publisher
Elsevier BV
Organization
Annual meeting of the Society for Adolescent Health and Medicine, 2016, Washington DC, USA
ISSN
1054-139X
Publication state
Published
Issued date
02/2016
Peer-reviewed
Oui
Volume
58
Number
2
Series
Supl.
Pages
S17-S18
Language
english
Abstract
Purpose: To evaluate Children’s at Home (C@H), a social media website created for parents of adolescents with Neurofibromatosis Type 1 (NF1.)
Methods: Interventional study for parents of adolescents with NF1 aged 13-18 years including 2 phases: (1) Creating Video Intervention/Prevention Assessment (VIA) visual narratives on smartphones about parenting a child with NF1; (2) Interacting on C@H, a secure, medically-moderated social media website, with phase 1 visual narratives and responses using video and text. C@H was evaluated qualitatively via semi-structured phone interviews at: enrollment (T0), after creating video narratives (T1), and after interacting with other parents on C@H (T2).
Methods: Interventional study for parents of adolescents with NF1 aged 13-18 years including 2 phases: (1) Creating Video Intervention/Prevention Assessment (VIA) visual narratives on smartphones about parenting a child with NF1; (2) Interacting on C@H, a secure, medically-moderated social media website, with phase 1 visual narratives and responses using video and text. C@H was evaluated qualitatively via semi-structured phone interviews at: enrollment (T0), after creating video narratives (T1), and after interacting with other parents on C@H (T2).
Keywords
Pediatrics, Perinatology, and Child Health, Public Health, Environmental and Occupational Health, Psychiatry and Mental health
Web of science
Create date
01/09/2017 15:10
Last modification date
20/08/2019 14:06