Returning Results: Let's Be Honest!

Details

Serval ID
serval:BIB_226AFEF3ED6A
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Returning Results: Let's Be Honest!
Journal
Genetic testing and molecular biomarkers
Author(s)
Elger B.S., De Clercq E.
ISSN
1945-0257 (Electronic)
ISSN-L
1945-0257
Publication state
Published
Issued date
03/2017
Peer-reviewed
Oui
Volume
21
Number
3
Pages
134-139
Language
english
Notes
Publication types: Journal Article
Publication Status: ppublish
Abstract
Biobank research has the potential to return results that could have beneficial and even life-saving consequences for participants. This possibility raises some important questions, not only about the ethical duty to return results within a research setting, but also about participants' right to refuse results and researchers' responsibility to respect that choice. This article argues in favor of adopting a return-of-results policy that limits participants' ability to refuse clinically relevant and actionable results. We state that biobanks should allow donors only if they are aware of and agree to this return policy. If they do not agree to this, they retain the option not to participate in the biobank research. The aim of this article is to discuss the practical and ethical reasons in favor of this return-of-result policy and, thus, to underline the importance of "honesty" in biobanking regulations.

Keywords
Biological Specimen Banks/ethics, Biological Specimen Banks/legislation & jurisprudence, Biological Specimen Banks/standards, Humans
Pubmed
Web of science
Create date
20/03/2017 16:10
Last modification date
20/08/2019 13:59
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