Behavioral variant frontotemporal dementia: advanced disease stages and death. A step to palliative care.

Détails

ID Serval
serval:BIB_F9EB52347B36
Type
Article: article d'un périodique ou d'un magazine.
Collection
Publications
Institution
Titre
Behavioral variant frontotemporal dementia: advanced disease stages and death. A step to palliative care.
Périodique
International journal of geriatric psychiatry
Auteur⸱e⸱s
Diehl-Schmid J., Richard-Devantoy S., Grimmer T., Förstl H., Jox R.
ISSN
1099-1166 (Electronic)
ISSN-L
0885-6230
Statut éditorial
Publié
Date de publication
08/2017
Peer-reviewed
Oui
Volume
32
Numéro
8
Pages
876-881
Langue
anglais
Notes
Publication types: Journal Article ; Research Support, Non-U.S. Gov't
Publication Status: ppublish
Résumé
The aim of the present study was to gain insight into the living and care situation in advanced behavioral variant frontotemporal dementia (bvFTD), to describe symptoms and findings in advanced bvFTD, and to evaluate somatic comorbidities and circumstances of death.
Standardized interviews were conducted with family caregivers of 83 patients with bvFTD. Forty-four percent of the patients were already deceased at the time of the interview.
At the time of the interview or death, respectively, 47% of the patients lived in a nursing home. The median time between symptom onset and nursing home admission was 5.0 ± 5.5 years. In moderate and severe dementia stages almost all patients suffered from severe disabilities including impairment of language, gait, swallowing, and of the ability to care for themselves. Sixteen percent of the patients had got enteral tube feeding. Comorbid somatic diseases were diagnosed in 46% of the patients. Twenty-three percent of the deceased patients had been admitted into a hospital before death. Cardiovascular disease and respiratory disease, mostly pneumonia, were the most frequent causes of death.
Advanced bvFTD is characterized by severe cognitive impairment and physical disabilities. BvFTD leads to a premature death. Our findings stress the importance of strategies that maximize patient comfort in advanced disease stages and allow for a peaceful death. Copyright © 2016 John Wiley & Sons, Ltd.
Mots-clé
Aged, Cause of Death, Comorbidity, Female, Frontotemporal Dementia/mortality, Frontotemporal Dementia/physiopathology, Frontotemporal Dementia/psychology, Hospitalization/statistics & numerical data, Humans, Male, Mental Disorders/etiology, Middle Aged, Neuropsychological Tests, Nursing Homes/statistics & numerical data, Palliative Care/statistics & numerical data, Somatoform Disorders, advanced disease stage, bvFTD, death, frontotemporal dementia, palliative care, young onset dementia
Pubmed
Web of science
Création de la notice
16/02/2017 17:37
Dernière modification de la notice
05/02/2020 6:20
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