The Canadian English and French versions of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

Détails

Ressource 1Télécharger: 29637336_BIB_BE83F5E60C4E.pdf (630.58 [Ko])
Etat: Public
Version: Final published version
Licence: CC BY 4.0
ID Serval
serval:BIB_BE83F5E60C4E
Type
Article: article d'un périodique ou d'un magazine.
Collection
Publications
Institution
Titre
The Canadian English and French versions of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).
Périodique
Rheumatology international
Auteur(s)
Miettunen P., Chédeville G., Mazza J., Hofer M., Montobbio C., Consolaro A., Bovis F., Ruperto N.
Collaborateur(s)
Paediatric Rheumatology International Trials Organisation (PRINTO)
ISSN
1437-160X (Electronic)
ISSN-L
0172-8172
Statut éditorial
Publié
Date de publication
04/2018
Peer-reviewed
Oui
Volume
38
Numéro
Suppl 1
Pages
83-90
Langue
anglais
Notes
Publication types: Journal Article ; Multicenter Study ; Validation Studies
Publication Status: ppublish
Résumé
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Canadian varieties of English and French. The reading comprehension of the questionnaires were tested in a probe sample of ten parents and ten JIA patients for Canadian English and other ten parents and ten JIA patients for Canadian French. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability and construct validity (convergent and discriminant validity). A total of 208 JIA patients (2.9% systemic, 41.8% oligoarticular, 27.9% RF negative polyarthritis, 27.4% other categories) and 152 healthy children, were enrolled at two paediatric rheumatology centres. The JAMAR components discriminated well healthy subjects from JIA patients. Notably, there was no significant difference between the healthy subjects and their affected peers in the psychosocial quality of life variable. All JAMAR components revealed good psychometric performances. In conclusion, the Canadian English and French versions of the JAMAR are valid tools for the assessment of children with JIA and are suitable for use both in routine clinical practice and clinical research.
Mots-clé
Adolescent, Age of Onset, Arthritis, Juvenile/diagnosis, Arthritis, Juvenile/physiopathology, Arthritis, Juvenile/psychology, Arthritis, Juvenile/therapy, Canada, Case-Control Studies, Child, Child, Preschool, Cultural Characteristics, Disability Evaluation, Female, Health Status, Humans, Male, Parents/psychology, Patient Reported Outcome Measures, Patients/psychology, Predictive Value of Tests, Prognosis, Psychometrics, Quality of Life, Reproducibility of Results, Rheumatology/methods, Translating, Disease status, Functional ability, Health related quality of life, JAMAR, Juvenile idiopathic arthritis
Pubmed
Web of science
Open Access
Oui
Création de la notice
14/04/2018 9:45
Dernière modification de la notice
20/08/2019 16:32
Données d'usage