The use of alternative medicine by patients with amyotrophic lateral sclerosis.

Détails

ID Serval
serval:BIB_A8CFB3682C73
Type
Article: article d'un périodique ou d'un magazine.
Collection
Publications
Titre
The use of alternative medicine by patients with amyotrophic lateral sclerosis.
Périodique
Journal of the Neurological Sciences
Auteur⸱e⸱s
Wasner M., Klier H., Borasio G.D.
ISSN
0022-510X (Print)
ISSN-L
0022-510X
Statut éditorial
Publié
Date de publication
2001
Volume
191
Numéro
1-2
Pages
151-154
Langue
anglais
Notes
Publication types: Journal ArticlePublication Status: ppublish
Résumé
The use of complementary and alternative medicine (CAM) is increasing in all industrialised countries, especially in patients with chronic and incurable diseases. However, no data are available on the use of CAM by patients with amyotrophic lateral sclerosis (ALS). The German Association for Neuromuscular Diseases (DGM) mailed out a questionnaire on CAM to 350 ALS patients, 171 of whom completed and returned the survey (response rate 49%). The use of CAM was reported by 92 patients (54%). There were no significant demographic differences between users and nonusers. The patients used 73 different methods or substances; some tried up to 11 different treatments. The most widely used methods were: acupuncture (47%), homeopathy (40%), naturopathy (24%) and esoteric treatments (20%). The lower the patients' expectations from CAM, the better was the subjectively perceived effect. In most cases (60%), alternative treatments were performed by a physician. Patients spent on average 4000 (approximately US$4500) on CAM, generally without reimbursement. CAM is most often used in addition to conventional treatments and may be part of the patients' coping strategy. Open communication between patients and physicians is essential to warn the patients of medically or financially hazardous treatments. Future research should look at the possible palliative effects of CAM on symptom control and quality of life of patients and families.
Mots-clé
Adult, Aged, Aged, 80 and over, Amyotrophic Lateral Sclerosis/therapy, Complementary Therapies/economics, Complementary Therapies/statistics & numerical data, Disease Progression, Female, Germany, Health Care Surveys/statistics & numerical data, Health Status, Humans, Insurance, Health, Reimbursement/statistics & numerical data, Male, Middle Aged, Patient Satisfaction/statistics & numerical data, Questionnaires
Pubmed
Web of science
Création de la notice
13/01/2014 17:22
Dernière modification de la notice
20/08/2019 15:13
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