Parents' preferences for the organisation of long-term follow-up of childhood cancer survivors.
Détails
Télécharger: Vetsch_etal_2017_EJCC_FU_Parents.pdf (1178.16 [Ko])
Etat: Public
Version: Author's accepted manuscript
Licence: Non spécifiée
Etat: Public
Version: Author's accepted manuscript
Licence: Non spécifiée
ID Serval
serval:BIB_58871CD2B8BB
Type
Article: article d'un périodique ou d'un magazine.
Collection
Publications
Institution
Titre
Parents' preferences for the organisation of long-term follow-up of childhood cancer survivors.
Périodique
European journal of cancer care
Collaborateur⸱rice⸱s
Swiss Paediatric Oncology Group
Contributeur⸱rice⸱s
Ammann R., Angst R., Ansari P.M., Beck-Popovic P.M., Brazzola P., Greiner J., Grotzer M., Hengartner H., Kuehne T., Leibundgut K., Niggli F., Rischewski P.J., On der Weid N.
ISSN
1365-2354 (Electronic)
ISSN-L
0961-5423
Statut éditorial
Publié
Date de publication
03/2018
Peer-reviewed
Oui
Volume
27
Numéro
2
Pages
e12649
Langue
anglais
Notes
Publication types: Journal Article
Publication Status: ppublish
Publication Status: ppublish
Résumé
Parents take an important role in follow-up of young cancer survivors. We aimed to investigate (1) parents' preferences for organisation of follow-up (including content, specialists involved and models of care), and (2) parents' and children's characteristics predicting preference for generalist vs. specialist-led follow-up. We sent a questionnaire to parents of childhood cancer survivors aged 11-17 years. We assessed on a 4-point Likert scale (1-4), parents' preferences for organisation of long-term follow-up. Proposed models were: telephone/questionnaire, general practitioner (GP) (both categorised as generalist for regression analysis); and paediatric oncologist, medical oncologist or multidisciplinary team (MDT) (categorised as specialists). Of 284 contacted parents, 189 responded (67%). Parents welcomed if visits included checking for cancer recurrence (mean = 3.89), late effects screening (mean = 3.79), taking patients seriously (mean = 3.86) and competent staff (mean = 3.85). The preferred specialists were paediatric oncologists (mean = 3.73). Parents valued the paediatric oncologist model of care (mean = 3.49) and the MDT model (mean = 3.14) highest. Parents of children not attending clinic-based follow-up (OR = 2.97, p = .009) and those visiting a generalist (OR = 4.23, p = .007) favoured the generalist-led model. Many parents preferred a clinic-based model of follow-up by paediatric oncologists or a MDT. However, parents also valued the follow-up care model according to which their child is followed up.
Mots-clé
Europe, cancer registry, follow-up care, models of care, paediatric oncology, parents of childhood cancer survivors
Pubmed
Web of science
Création de la notice
07/02/2017 19:20
Dernière modification de la notice
20/08/2019 15:12