Evolution or Revolution? Recommendations to Improve the Swiss Health Data Framework.

Détails

ID Serval
serval:BIB_43F346B1465D
Type
Article: article d'un périodique ou d'un magazine.
Collection
Publications
Institution
Titre
Evolution or Revolution? Recommendations to Improve the Swiss Health Data Framework.
Périodique
Frontiers in public health
Auteur⸱e⸱s
Martani A., Geneviève L.D., Egli S.M., Erard F., Wangmo T., Elger B.S.
ISSN
2296-2565 (Electronic)
ISSN-L
2296-2565
Statut éditorial
Publié
Date de publication
2021
Peer-reviewed
Oui
Volume
9
Pages
668386
Langue
anglais
Notes
Publication types: Journal Article ; Research Support, Non-U.S. Gov't
Publication Status: epublish
Résumé
Background: Facilitating access to health data for public health and research purposes is an important element in the health policy agenda of many countries. Improvements in this sense can only be achieved with the development of an appropriate data infrastructure and the implementations of policies that also respect societal preferences. Switzerland is a revealing example of a country that has been struggling to achieve this aim. The objective of the study is to reflect on stakeholders' recommendations on how to improve the health data framework of this country. Methods: We analysed the recommendations collected as part of a qualitative study including 48 expert stakeholders from Switzerland that have been working principally with health databases. Recommendations were divided in themes and subthemes according to applied thematic analysis. Results: Stakeholders recommended several potential improvements of the health data framework in Switzerland. At the general level of mind-set and attitude, they suggested to foster the development of an explicit health data strategy, better communication and the respect of societal preferences. In terms of infrastructure, there were calls for the creation of a national data center, the improvement of IT solutions and the use of a Unique Identifier for patient data. Lastly, they recommended harmonising procedures for data access and to clarify data protection and consent rules. Conclusion: Recommendations show several potential improvements of the health data framework, but they have to be reconciled with existing policies, infrastructures and ethico-legal limitations. Achieving a gradual implementation of the recommended solutions is the preferable way forward for Switzerland and a lesson for other countries that are also seeking to improve health data access for public health and research purposes.
Mots-clé
Attitude, Health Policy, Humans, Qualitative Research, Switzerland, biomedical research, e-health, health data, health informatics, health policy
Pubmed
Web of science
Open Access
Oui
Création de la notice
29/06/2021 11:35
Dernière modification de la notice
02/12/2023 8:15
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