Access to specialized pediatric cancer care in Switzerland.

Détails

ID Serval
serval:BIB_246A7F3D7905
Type
Article: article d'un périodique ou d'un magazine.
Collection
Publications
Institution
Titre
Access to specialized pediatric cancer care in Switzerland.
Périodique
Pediatric Blood and Cancer
Auteur⸱e⸱s
Adam M., von der Weid N., Michel G., Zwahlen M., Lutz J.M., Probst-Hensch N., Niggli F., Kuehni C.
Collaborateur⸱rice⸱s
Swiss Pediatric Oncology Group (SPOG), Swiss Association of Cancer Registries (ASRT)
Contributeur⸱rice⸱s
Angst R., Paulussen M., Stahel V., Hirt A., Zimmermann K., Ozsahin AH., Berner M., von der Weid N., Beck Popovic M., Garcia E., Nobile Buetti L., Caflisch U., Bonetti Y., Greiner J., Hochreutener F., Niggli F., Markiewicz H., Jundt G., Lutz J-., Bouchardy C., Pury P., Fioretta G., Usel M., Frick H., Abutillo A-., Levi F., Ess S., Bordoni A., Spitale A., DeWeck D., Konzelmann L., Levi F., Probst N., Kofler A.
ISSN
1545-5017 (Electronic)
ISSN-L
1545-5009
Statut éditorial
Publié
Date de publication
2010
Volume
54
Numéro
5
Pages
721-727
Langue
anglais
Notes
Publication types: Comparative Study ; Journal Article ; Multicenter Study ; Research Support, Non-U.S. Gov't
Publication Status: ppublish
Résumé
BACKGROUND: Specialized pediatric cancer centers (PCCs) are thought to be essential to obtain state-of-the-art care for children and adolescents. We determined the proportion of childhood cancer patients not treated in a PCC, and described their characteristics and place of treatment.
PROCEDURE: The Swiss Childhood Cancer Registry (SCCR) registers all children treated in Swiss PCCs. The regional cancer registries (covering 14/26 cantons) register all cancer patients of a region. The children of the SCCR with data from 7 regions (11 cantons) were compared, using specialized software for record linkage. All children <16 years of age at diagnosis with primary malignant tumors, diagnosed between 1990 and 2004, and living in one of these regions were included in the analysis.
RESULTS: 22.1% (238/1,077) of patients recorded in regional registries were not registered in the SCCR. Of these, 15.7% (169/1,077) had never been in a PCC while 6.4% (69/1,077) had been in a PCC but were not registered in the SCCR, due to incomplete data flow. In all diagnostic groups and in all age groups, a certain proportion of children was treated outside a PCC, but this proportion was largest in children suffering from malignant bone tumors/soft tissue sarcomas and from malignant epithelial neoplasms, and in older children. The proportion of patients treated in a PCC increased over the study period (P < 0.0001).
CONCLUSIONS: One in six childhood cancer patients in Switzerland was not treated in a PCC. Whether these patients have different treatment outcomes remained unclear.
Mots-clé
Adolescent, Cancer Care Facilities/utilization, Child, Child, Preschool, Female, Health Services Accessibility, Hospitals, Pediatric/utilization, Humans, Infant, Infant, Newborn, Likelihood Functions, Male, Multivariate Analysis, Neoplasms/therapy, Quality of Health Care, Registries/statistics & numerical data, Switzerland
Pubmed
Web of science
Création de la notice
04/02/2010 15:59
Dernière modification de la notice
20/08/2019 13:02
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