Designing Privacy in Personalized Health: An Empirical Analysis

Détails

Ressource 1Télécharger: 20539517231158636.pdf (1327.92 [Ko])
Etat: Public
Version: Final published version
Licence: CC BY 4.0
ID Serval
serval:BIB_14CAAD2BF6E1
Type
Article: article d'un périodique ou d'un magazine.
Collection
Publications
Institution
Titre
Designing Privacy in Personalized Health: An Empirical Analysis
Périodique
Big Data & Society
Auteur⸱e⸱s
Deruelle T., Kalouguina V., Trein Ph., Wagner J.
Statut éditorial
Publié
Date de publication
2023
Peer-reviewed
Oui
Volume
10
Numéro
1
Pages
1-9
Langue
anglais
Résumé
A crucial challenge for personalized health is the handling of individuals’ data and specifically the protection of their privacy. Secure storage of personal health data is of paramount importance to convince citizens to collect personal health data. In this quasi-experimental, cross-sectional study, we test individuals’ willingness to produce and store personal health data, based on different storage option whether this data is presented as common good or private good. In this study, we focus on the non-medical context with two means to self-produce data via connected devices that record physical activity or elect to take a genetic test to appraise risks of diseases. We use data from a survey experiment fielded in Switzerland in March 2020 and perform regression analyses on a representative sample of Swiss citizens in the French- and German-speaking cantons. Our analysis shows that respondents are more likely to use both apps and tests when data are presented as private good that would be stored by individuals themselves. Our results demonstrate that concerns regarding the privacy of personal heath data storage trumps any other variables when it comes to the willingness to use personalized health technologies. Individuals prefer a data storage format where they retain control over the data. Ultimately, this study presents results susceptible to inform decision-makers in designing privacy in personalized health initiatives.
Mots-clé
personalized health, health apps, genetic tests, data storage
Open Access
Oui
Financement(s)
Fonds national suisse / Projets / CRSII5_180350
Création de la notice
19/01/2023 18:05
Dernière modification de la notice
04/03/2023 8:08
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