Family members' experiences of assisted dying: A systematic literature review with thematic synthesis.

Détails

ID Serval
serval:BIB_1102A15BCE31
Type
Article: article d'un périodique ou d'un magazine.
Collection
Publications
Institution
Titre
Family members' experiences of assisted dying: A systematic literature review with thematic synthesis.
Périodique
Palliative medicine
Auteur⸱e⸱s
Gamondi C., Fusi-Schmidhauser T., Oriani A., Payne S., Preston N.
ISSN
1477-030X (Electronic)
ISSN-L
0269-2163
Statut éditorial
Publié
Date de publication
09/2019
Peer-reviewed
Oui
Volume
33
Numéro
8
Pages
1091-1105
Langue
anglais
Notes
Publication types: Journal Article ; Systematic Review
Publication Status: ppublish
Résumé
Families' experiences of assisted dying are under-investigated and families are rarely considered in clinical guidelines concerning assisted dying.
To systematically review family experiences of assisted dying.
A systematic literature review using thematic synthesis.
MEDLINE, Embase, CINAHL, AMED (Allied and Complementary Medicine) and PsycINFO databases (January 1992 to February 2019). Studies investigating families' experiences on the practice of legalised assisted dying were included. We excluded studies prior to legalisation within the jurisdiction, secondary data analysis and opinion papers.
Nineteen articles met the inclusion criteria. Publications were derived from four countries: The Netherlands, United States (Oregon, Washington and Vermont), Canada and Switzerland. Dutch studies predominately investigated family involvement in euthanasia, while Swiss and American studies only reported on assisted suicide. Eleven studies had a qualitative design, using predominately in-depth interviews; seven were retrospective surveys. Five analytical themes represented families' experiences in assisted dying: (1) context of the decision, (2) grounding the decision, (3) cognitive and emotional work, (4) experiencing the final farewell and (5) grief and bereavement. The results showed that families can be very involved in supporting patients seeking assisted dying, where open communication is maintained. Family involvement appeared to be influenced by the type of legislation in their country and the families' perception of the social acceptability of assisted dying.
Our data confirm that families across all jurisdictions are involved in assisted suicide decision and enactment. Family needs are under-researched, and clinical guidelines should incorporate recommendations about how to consider family needs and how to provide them with evidence-based tailored interventions.
Mots-clé
Canada, Decision Making, Euthanasia, Family/psychology, Humans, Netherlands, Switzerland, United States, Systematic review, assisted dying, assisted suicide, euthanasia, family experiences, thematic synthesis
Pubmed
Web of science
Création de la notice
18/07/2019 17:30
Dernière modification de la notice
20/06/2020 5:18
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