A Swiss database and biobank to better understand and manage congenital lung anomalies.
Détails
Etat: Public
Version: Final published version
Licence: CC BY-NC-ND 4.0
ID Serval
serval:BIB_03F349DF3E32
Type
Article: article d'un périodique ou d'un magazine.
Collection
Publications
Institution
Titre
A Swiss database and biobank to better understand and manage congenital lung anomalies.
Périodique
Swiss medical weekly
ISSN
1424-3997 (Electronic)
ISSN-L
0036-7672
Statut éditorial
Publié
Date de publication
17/06/2019
Peer-reviewed
Oui
Volume
149
Pages
w20081
Langue
anglais
Notes
Publication types: Journal Article ; Observational Study
Publication Status: epublish
Publication Status: epublish
Résumé
Congenital lung anomalies are a group of rare malformations, often diagnosed during the prenatal period. Guidelines on how to manage these patients are currently under debate, especially with regard to prophylactic surgery in asymptomatic patients, or how to proceed with conservative follow-up. Currently, there is no clear consensus on management strategies. A Swiss congenital lung anomaly national database and biobank was created in 2016 to enable data recording and collection of surgical lung samples in order to help define the most appropriate management strategies. This national observational cohort study represents an important step towards a better understanding of the pathophysiology and clinical course of the diseases included under congenital lung anomalies, especially in the context of a small country like Switzerland.
Mots-clé
Adolescent, Biological Specimen Banks, Child, Child, Preschool, Cohort Studies, Databases, Factual, Humans, Infant, Infant, Newborn, Lung Diseases/congenital, Lung Diseases/physiopathology, Lung Diseases/therapy, Prenatal Diagnosis, Rare Diseases, Switzerland
Pubmed
Web of science
Open Access
Oui
Création de la notice
18/07/2019 17:43
Dernière modification de la notice
13/04/2024 7:08