Medical record search engines, using pseudonymised patient identity: an alternative to centralised medical records

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State: Public
Version: author
Serval ID
serval:BIB_FC9EA1CE5C54
Type
Inproceedings: an article in a conference proceedings.
Collection
Publications
Institution
Title
Medical record search engines, using pseudonymised patient identity: an alternative to centralised medical records
Title of the conference
International Journal of Medical Informatics
Author(s)
Quantin C., Jaquet-Chiffelle D.-O., Coatrieux G., FASSA M., Allaert F.-A.
ISSN
1386-5056
Publication state
Published
Issued date
02/2011
Peer-reviewed
Oui
Editor
Koji Yamamoto
Volume
80
Pages
e6-e11
Language
english
Notes
Special Issue: Security in Health Information Systems
Abstract
Purpose
The purpose of our multidisciplinary study was to define a pragmatic and secure alternative to the creation of a national centralised medical record which could gather together the different parts of the medical record of a patient scattered in the different hospitals where he was hospitalised without any risk of breaching confidentiality.
Methods
We first analyse the reasons for the failure and the dangers of centralisation (i.e. difficulty to define a European patients' identifier, to reach a common standard for the contents of the medical record, for data protection) and then propose an alternative that uses the existing available data on the basis that setting up a safe though imperfect system could be better than continuing a quest for a mythical perfect information system that we have still not found after a search that has lasted two decades.
Results
We describe the functioning of Medical Record Search Engines (MRSEs), using pseudonymisation of patients' identity. The MRSE will be able to retrieve and to provide upon an MD's request all the available information concerning a patient who has been hospitalised in different hospitals without ever having access to the patient's identity. The drawback of this system is that the medical practitioner then has to read all of the information and to create his own synthesis and eventually to reject extra data.
Conclusions
Faced with the difficulties and the risks of setting up a centralised medical record system, a system that gathers all of the available information concerning a patient could be of great interest. This low-cost pragmatic alternative which could be developed quickly should be taken into consideration by health authorities.
Keywords
Medical record, Patient identifier, Direct access, Data security, Privacy, E-health
Create date
26/03/2011 13:00
Last modification date
20/08/2019 17:27
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