Pediatric advance care planning: a systematic review.

Details

Serval ID
serval:BIB_E5A43F1B6B1F
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Pediatric advance care planning: a systematic review.
Journal
Pediatrics
Author(s)
Lotz J.D., Jox R.J., Borasio G.D., Führer M.
ISSN
1098-4275 (Electronic)
ISSN-L
0031-4005
Publication state
Published
Issued date
2013
Volume
131
Number
3
Pages
e873-e880
Language
english
Notes
Publication types: Journal Article ; Research Support, Non-U.S. Gov'tPublication Status: ppublish. PDF type: review article
Abstract
BACKGROUND AND OBJECTIVES: Advance care planning (ACP) is increasingly regarded as the gold standard in the care of patients with life-limiting illnesses. Research has focused on adults, but ACP is also being practiced in pediatrics. We conducted a systematic review on empirical literature on pediatric ACP (pACP) to assess current practices, effects, and perspectives of pACP.
METHODS: We searched PubMed, BELIT, and PSYCinfo for empirical literature on pACP, published January 1991 through January 2012. Titles, abstracts, and full texts were screened by 3 independent reviewers for studies that met the predefined criteria. The evidence level of the studies was assessed. Relevant study outcomes were retrieved according to predefined questions.
RESULTS: We included 5 qualitative and 8 quantitative studies. Only 3 pACP programs were identified, all from the United States. Two of them were informed by adult programs. Major pACP features are discussions between families and care providers, as well as advance directives. A chaplain and other providers may be involved if required. Programs vary in how well they are evaluated; only 1 was studied by using a randomized controlled trial. Preliminary data suggest that pACP can successfully be implemented and is perceived as helpful. It may be emotionally relieving and facilitate communication and decision-making. Major challenges are negative reactions from emergency services, schools, and the community.
CONCLUSIONS: There are few systematic pACP programs worldwide and none in Europe. Future research should investigate the needs of all stakeholders. In particular, the perspective of professionals has so far been neglected.
Pubmed
Web of science
Create date
12/04/2013 17:45
Last modification date
20/08/2019 16:09
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