Specialized home palliative care for adults and children: differences and similarities.

Details

Serval ID
serval:BIB_E575903A46A2
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Specialized home palliative care for adults and children: differences and similarities.
Journal
Journal of Palliative Medicine
Author(s)
Groh G., Feddersen B., Führer M., Borasio G.D.
ISSN
1557-7740 (Electronic)
ISSN-L
1557-7740
Publication state
Published
Issued date
2014
Peer-reviewed
Oui
Volume
17
Number
7
Pages
803-810
Language
english
Notes
Publication types: Journal Article ; Research Support, Non-U.S. Gov't Publication Status: ppublish
Abstract
OBJECTIVE: To compare the provision of specialized home palliative care (SHPC) by the adult and pediatric SHPC teams at the Munich University Hospital.
METHODS: All patients treated by one of the SHPC teams and their primary caregivers were eligible for the prospective nonrandomized survey. We analyzed the demographics, the underlying diseases, duration and impact of SHPC on symptom control and quality of life (QOL) as well as the caregivers' burden and QOL.
RESULTS: Between April 2011 and June 2012, 100 adult and 43 pediatric patients were treated consecutively; 60 adults (median age, 67.5 years; 55% male) and 40 children (median age, 6 years, 57% male) were included in the study. Oncologic diseases were dominant only in the adult cohort (87 versus 25%, p<0.001). The median period of care was higher in the pediatric sample (11.8 versus 4.3 weeks; NS). Ninety-five percent of adult and 45% of pediatric patients died by the end of the study (p<0.001), 75% and 90% of them at home, respectively. The numbers of significant others directly affected by the patient's disease was higher in children (mean 3.4 versus 1.2; p<0.001). The QOL of adult patients and children (p<0.05 for both), as well as of their primary caregivers (p<0.001 for both) improved during SHPC, while the caregivers' burden was lowered (p<0.001 for both).
CONCLUSIONS: Our results show important differences in several clinically relevant parameters between adults and children receiving SHPC. This should assist in the development of age-group specific SHPC concepts that effectively address the specific needs of each patient population.
Pubmed
Web of science
Create date
09/01/2015 9:29
Last modification date
20/08/2019 16:08
Usage data