Donor information for living donor liver transplantation: where can comprehensive information be found?

Details

Serval ID
serval:BIB_D86A2079494B
Type
Article: article from journal or magazin.
Collection
Publications
Title
Donor information for living donor liver transplantation: where can comprehensive information be found?
Journal
Liver transplantation : official publication of the American Association for the Study of Liver Diseases and the International Liver Transplantation Society
Author(s)
Melloul E., Raptis D.A., Oberkofler C.E., Dutkowski P., Lesurtel M., Clavien P.A.
ISSN
1527-6473 (Electronic)
ISSN-L
1527-6465
Publication state
Published
Issued date
08/2012
Volume
18
Number
8
Pages
892-900
Language
english
Notes
Publication types: Journal Article
Publication Status: ppublish
Abstract
Recently published data show that a large number of candidates for living donor liver transplantation (LDLT) actively look for additional information on the Internet because today it represents the main source of information for many of them. However, little is known about the quality of the information on LDLT available on the Internet. Our aim was, therefore, to comprehensively evaluate the online information available for LDLT candidates with the expanded Ensuring Quality Information for Patients (EQIP) tool (0-36 items). One hundred Web sites on LDLT were initially found with the Google, Bing, and Yahoo search engines, and we identified 32 Web sites that provided specific information for such candidates in English. Only 9 Web sites addressed >20 items and the scores tended to be higher for educational (P = 0.13) and scientific sites (P = 0.07) compared to hospital sites. The median number of items from the EQIP tool was only 16 (interquartile range = 13-20), and quantitative postoperative morbidity and mortality risk estimates were available on only 19% and 44% of the Web sites, respectively, despite the idea of major complications being mentioned on most Web sites. This analysis demonstrated several significant shortcomings in the quality of the information provided to potential donors for LDLT according to the EQIP instrument. We conclude that there is an urgent need to produce a Web site compliant with international standards for the quality of donor information.

Keywords
Access to Information, Computers, Humans, Internet, Language, Liver Transplantation/methods, Living Donors, Medical Informatics, Observer Variation, Patient Education as Topic/methods, Reproducibility of Results, Tissue and Organ Procurement/methods
Pubmed
Open Access
Yes
Create date
15/02/2017 10:48
Last modification date
20/08/2019 15:57
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