Time invested in the global respiratory care of cystic fibrosis paediatrics patients.

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State: Public
Version: Final published version
Serval ID
serval:BIB_C390DB9F457F
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Time invested in the global respiratory care of cystic fibrosis paediatrics patients.
Journal
Clinical Respiratory Journal
Author(s)
Hafen G.M., Kernen Y., De Halleux Q.M.
ISSN
1752-699X (Electronic)
ISSN-L
1752-6981
Publication state
Published
Issued date
2013
Volume
7
Number
4
Pages
338-341
Language
english
Notes
Publication types: Journal ArticlePublication Status: ppublish
Abstract
INTRODUCTION: Respiratory therapy is a keystone of the treatment for cystic fibrosis (CF) lung disease, but it is time consuming.
OBJECTIVES: We aimed to assess the total time spent on respiratory therapy, including chest physiotherapy (CPT) and physical activity (PA), as well as inhalation therapy (IT) and maintenance of materials (MM) to rationalise and optimise treatment.
METHODS: A cross-sectional prospective study in a paediatric CF cohort. A questionnaire was developed to look at the time spent on respiratory care over 3 months. Enrolled in this study are all CF patients aged from 6 to 16 years (the exclusion criterion was lung transplantation).
RESULTS: Of the 40 enrolled patients, 22 participated (13 boys and 9 girls), with a mean age of 11 years. The patients spent approximately 19.46 h per week (standard deviation ± 7.53, 8.00-35.25 h) on therapy: CPT (30.58%), IT (15.11%), PA (50%) and MM (4.32%), without statistical significance between sexes.
CONCLUSION: In our cohort, CF patients spent an average of nearly 20 h a week in respiratory therapy, within a wide range of between 8 h to almost 36 h a week. PA consumes almost half of the time. Physicians have to take into consideration the burden of the treatment, to optimise the therapy.
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Create date
01/11/2013 20:52
Last modification date
20/08/2019 15:38
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