Honesty and hope: announcement of diagnosis in ALS.

Details

Serval ID
serval:BIB_C0C9F5108549
Type
Article: article from journal or magazin.
Publication sub-type
Review (review): journal as complete as possible of one specific subject, written based on exhaustive analyses from published work.
Collection
Publications
Title
Honesty and hope: announcement of diagnosis in ALS.
Journal
Neurology
Author(s)
Silani V., Borasio G.D.
ISSN
0028-3878 (Print)
ISSN-L
0028-3878
Publication state
Published
Issued date
1999
Volume
53
Number
8 Suppl. 5
Pages
S37-S42
Language
english
Notes
Publication types: Journal Article ; ReviewPublication Status: ppublish
Abstract
Informing patients and their families about a diagnosis such as amyotrophic lateral sclerosis (ALS) is a daunting task for any physician. The way the diagnosis is communicated will have a major impact on the physician-patient relationship and the attitude of the patient toward the disease and toward symptomatic treatment measures. Breaking the news can be truly defined as the starting point of palliative care in ALS. It is an ongoing information process which, by its nature, escapes narrow definitions or standardization attempts. Nevertheless, a number of techniques exist to facilitate the process and ease the burden for physicians, patients, and families. We believe that the terminal phase should be discussed at the latest when first respiratory symptoms appear, to prevent unwarranted fears of "choking to death."
Keywords
Amyotrophic Lateral Sclerosis/diagnosis, Amyotrophic Lateral Sclerosis/psychology, Humans, Physician-Patient Relations, Truth Disclosure
Pubmed
Web of science
Create date
14/01/2014 10:47
Last modification date
20/08/2019 15:35
Usage data