Prenatal diagnosis of facial clefts: evaluation of a specialised counselling.

Details

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State: Public
Version: Final published version
Serval ID
serval:BIB_BBD76DE4FD2D
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Prenatal diagnosis of facial clefts: evaluation of a specialised counselling.
Journal
Swiss medical weekly
Author(s)
Rey-Bellet C., Hohlfeld J.
ISSN
1424-7860 (Print)
ISSN-L
0036-7672
Publication state
Published
Issued date
30/10/2004
Peer-reviewed
Oui
Volume
134
Number
43-44
Pages
640-644
Language
english
Notes
Publication types: Journal Article
Publication Status: ppublish
Abstract
Prenatal diagnosis of cleft lip and palate has raised many questions concerning the best way to inform the parents and offer appropriate support during the remaining pregnancy to help prepare a positive birth experience. Prenatal counselling differs according to who is responsible, and to that person's knowledge of the practical aspects of care and the impact of the malformation on the child's quality of life. The aim of the study was to evaluate our current techniques and modify them when appropriate.
29 couples having experienced prenatal diagnosis were asked to respond retrospectively to a questionnaire. Personal obstetric and family history, timing and quality of information provided and their impressions at birth were considered.
The parents used several sources of information: the obstetrician, the counsel by the cleft team surgeon, the parents support groups and the Internet. 93% of the parents felt well prepared psychologically for the birth of their child and concerning the practical aspects of care. 54% felt relieved that their child was less affected than imagined. 96% considered prenatal diagnosis a benefit.
Basic information should be provided soon after ultrasound confirmation, followed by progressively more detailed technical discussions over the remaining pregnancy.

Keywords
Cleft Lip/diagnosis, Cleft Lip/embryology, Cleft Lip/psychology, Counseling, Data Display, Delivery of Health Care, Female, Gestational Age, Humans, Male, Parents/psychology, Prenatal Diagnosis, Retrospective Studies, Surveys and Questionnaires, Switzerland
Pubmed
Web of science
Create date
28/01/2008 9:06
Last modification date
20/08/2019 15:29
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