Le Registre suisse pour la santé du cerveau - Une infrastructure nationale pour la recherche sur la maladie d’Alzheimer [The Swiss Brain Health Registry : a national infrastructure for Alzheimer's research]

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State: Public
Version: Final published version
License: CC BY-NC-ND 4.0
Serval ID
serval:BIB_B55C98FD42D1
Type
Article: article from journal or magazin.
Publication sub-type
Review (review): journal as complete as possible of one specific subject, written based on exhaustive analyses from published work.
Collection
Publications
Institution
Title
Le Registre suisse pour la santé du cerveau - Une infrastructure nationale pour la recherche sur la maladie d’Alzheimer [The Swiss Brain Health Registry : a national infrastructure for Alzheimer's research]
Journal
Revue medicale suisse
Author(s)
Boillat M., Annoni J.M., Démonet J.F., Allali G., Felbecker A., Gietl A., Klöppel S., Monsch A., Sacco L., Sollberger M., Frisoni G.B.
ISSN
1660-9379 (Print)
ISSN-L
1660-9379
Publication state
Published
Issued date
15/12/2021
Peer-reviewed
Oui
Volume
17
Number
763
Pages
2202-2205
Language
french
Notes
Publication types: Journal Article
Publication Status: ppublish
Abstract
The Memory Centres of several Swiss hospitals have set up a national online registry for Alzheimer's research, called www.BHR-suisse.org. This type of registry already exists in the United States (www.brainhealthregistry.org/) and the Netherlands (https://hersenonderzoek.nl/). It contributes, as do these initiating sites, to the creation of a global database of research partners <sup>b</sup> who wish to contribute by participating in studies on neurodegenerative diseases and more particularly on Alzheimer's disease. By registering, they provide a certain amount of information and become potential research partners. Researchers can then select a panel of volunteers according to the selection and exclusion criteria of their studies, contact them and include them in their studies.
Keywords
Alzheimer Disease/epidemiology, Alzheimer Disease/therapy, Brain, Humans, Netherlands, Registries, Switzerland/epidemiology, United States
Pubmed
Create date
11/01/2022 12:50
Last modification date
04/10/2023 6:15
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