Citizen advisory groups for the creation and improvement of decision aids: experience from two Swiss centers for primary care.

Details

Ressource 1Download: s40900-021-00283-0.pdf (1808.81 [Ko])
State: Public
Version: Final published version
License: CC BY 4.0
Serval ID
serval:BIB_B3AF01396DA0
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Citizen advisory groups for the creation and improvement of decision aids: experience from two Swiss centers for primary care.
Journal
Research involvement and engagement
Author(s)
Selby K., Cardinaux R., Metry B., de Rougemont S., Chabloz J., Meier-Herrmann V., Stoller J., Durand M.A., Auer R.
ISSN
2056-7529 (Electronic)
ISSN-L
2056-7529
Publication state
Published
Issued date
05/06/2021
Peer-reviewed
Oui
Volume
7
Number
1
Pages
37
Language
english
Notes
Publication types: Journal Article
Publication Status: epublish
Abstract
Guidelines for patient decision aids (DA) recommend target population involvement throughout the development process, but developers may struggle because of limited resources. We sought to develop a feasible means of getting repeated feedback from users.
Between 2017 and 2020, two Swiss centers for primary care (Lausanne and Bern) created citizen advisory groups to contribute to multiple improvement cycles for colorectal, prostate and lung cancer screening DAs. Following Community Based Participatory Research principles, we collaborated with local organizations to recruit citizens aged 50 to 75 without previous cancer diagnoses. We remunerated incidental costs and participant time. One center supplemented in-person meetings by mailed paper questionnaires, while the other supplemented meetings using small-group workshops and analyses of meeting transcripts.
In Lausanne, we received input from 49 participants for three DAs between 2017 and 2020. For each topic, participants gave feedback on the initial draft and 2 subsequent versions during in-person meetings with ~ 8 participants and one round of mailed questionnaires. In Bern, 10 participants were recruited among standardized patients from the university, all of whom attended in-person meetings every three months between 2017 and 2020. At both sites, numerous changes were made to the content, appearance, language, and tone of DAs and outreach materials. Participants reported high levels of satisfaction with the participative process.
Citizen advisory groups are a feasible means of repeatedly incorporating end-user feedback during the creation of multiple DAs. Methodological differences between the two centers underline the need for a flexible model adapted to local needs.
Keywords
Citizen involvement, Decision aids, Participatory research
Pubmed
Open Access
Yes
Create date
15/06/2021 15:04
Last modification date
21/11/2022 8:31
Usage data