Follow-up care amongst long-term childhood cancer survivors: a report from the Swiss Childhood Cancer Survivor Study.

Details

Serval ID
serval:BIB_A80C0814FA73
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Follow-up care amongst long-term childhood cancer survivors: a report from the Swiss Childhood Cancer Survivor Study.
Journal
European Journal of Cancer
Author(s)
Rebholz C.E., von der Weid N.X., Michel G., Niggli F.K., Kuehni C.E.
Working group(s)
Swiss Pediatric Oncology Group (SPOG)
Contributor(s)
Angst R., Paulussen M., Stahel V., Hirt A., Zimmermann K., Ozsahin AH., Berner M., Popovic MB., Garcia E., Buetti LN., Brazzola P., Caflisch U., Bonetti Y., Greiner J., Hengartner H., Hochreutner F., Grotzer M., Markiewicz H.
ISSN
1879-0852 (Electronic)
ISSN-L
0959-8049
Publication state
Published
Issued date
2011
Volume
47
Number
2
Pages
221-229
Language
english
Notes
Publication types: Journal Article ; Research Support, Non-U.S. Gov't
Publication Status: ppublish
Abstract
In the Swiss Childhood Cancer Survivor Study, we aimed to assess the proportion of long-term survivors attending follow-up care, to characterise attendees and to describe the health professionals involved. We sent a questionnaire to 1252 patients, of whom 985 (79%) responded, aged in average 27 years (range 20-49). Overall, 183 (19%) reported regular, 405 (41%) irregular and 394 (40%) no follow-up. For 344, severity of late effects had been classified in a previous medical examination. Only 17% and 32% of survivors with moderate and severe late effects respectively had made regular visits a decade later. Female gender, after a shorter time since diagnosis, had radiotherapy, and having suffered a relapse predicted follow-up. In the past year, 8% had seen a general practitioner only, 10% a paediatric or adult oncologist and 16% other health specialists for a cancer related problem. These findings underline the necessity to implement tailored national follow-up programmes.
Keywords
Adolescent, Adult, Child, Child, Preschool, Female, Follow-Up Studies, Health Personnel/utilization, Health Status, Humans, Infant, Male, Middle Aged, Neoplasm Recurrence, Local, Neoplasms/therapy, Patient Acceptance of Health Care/statistics & numerical data, Sex Factors, Survivors/statistics & numerical data, Switzerland, Young Adult
Pubmed
Web of science
Create date
22/12/2010 14:41
Last modification date
20/08/2019 15:12
Usage data