Making personalized medicine ethical: a critical examination of the new promises of ‘personalized health' in Switzerland

Details

Serval ID
serval:BIB_A11E7D8AEAD7
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Making personalized medicine ethical: a critical examination of the new promises of ‘personalized health' in Switzerland
Journal
Science and Public Policy
Author(s)
Barazzetti Gaia, Bühler Nolwenn, Audétat Marc, Kaufmann Alain
ISSN
0302-3427
1471-5430
Publication state
Published
Issued date
05/08/2021
Peer-reviewed
Oui
Language
english
Abstract
This article explores how promises are forged in the emerging techno-scientific field of ‘personalized health’ (PH) in Switzerland and how they challenge the research-healthcare boundary when dealing with issues of ethical acceptability. Switzerland provides a relevant location in which to examine these questions as PH has emerged in this context with the specific connotation of improving health in the population as a whole, through the development of a data infrastructure to enable nationwide accessibility and sharing of health-related data. Drawing on our analyses of discourses and practices of scientific and institutional actors, we show that the development of PH in Switzerland is the result of ethical boundary work aimed at enrolling local biomedical institutions, heterogeneous groups of professionals, as well as the general public in nationwide research initiatives with important implications for healthcare and the healthcare system.
Keywords
Geography, Planning and Development, Public Administration, Management, Monitoring, Policy and Law
Create date
22/11/2019 9:53
Last modification date
06/08/2021 5:38
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