Current practice of transitional care for adolescents and young adults in Swiss paediatric and adult rheumatology centres.

Details

Serval ID
serval:BIB_900CE3D8422B
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Current practice of transitional care for adolescents and young adults in Swiss paediatric and adult rheumatology centres.
Journal
Swiss medical weekly
Author(s)
Berben L., Sigg N., Daly M.L., Bachmann S., Baer W., Berthet G., Bolt I., Dan D., Enderlin Steiger S., Fröhlich J., Hasler P., Hofer M., Huemer C., Kaiser D., Marcoli N., Palmer Sarott S., Rottländer Y., Schmid G., Soennichsen C., Strahm Furler L., Vanoni F., Wildi L., Daikeler T., Woerner A.
ISSN
1424-3997 (Electronic)
ISSN-L
0036-7672
Publication state
Published
Issued date
08/11/2021
Peer-reviewed
Oui
Volume
151
Pages
w30046
Language
english
Notes
Publication types: Journal Article
Publication Status: epublish
Abstract
About half of all children with rheumatic diseases need continuous medical care during adolescence and adulthood. A good transition into adult rheumatology is essential. Guidelines for a structured transition process have therefore been recommended by the European League Against Rheumatism (EULAR) and the Paediatric Rheumatology European Society (PReS). However, implementation of these guidelines requires resources often not available in a busy clinical practice.
To assess the current practice of transitional care in Switzerland in relation to EULAR/PReS recommendations and to describe gaps and challenges in following the recommendations.
All paediatric Swiss rheumatology centres and their collaborating adult centres offering a transition service to adult care were invited to participate in this survey. The responsible paediatric and adult rheumatologist of each centre was interviewed separately using a structured manual addressing the EULAR/PReS transitional care recommendations.
All 10 paediatric and 9 out of 10 adult rheumatologists agreed to participate. Centres varied in the number of patients in transition, from n = 0 to n = 111. The following EULAR/PReS recommendations were implemented and applied in most centres: continuity in the healthcare team, consultations focused on adolescents and young adults, joint consultations between the paediatric and adult rheumatologist, and access to the EULAR website. Only rarely did a centre have a written transition policy or evaluate their transitional care programme. The vast majority of the interviewees had no specific training in adolescent health. Most centres rated their transitional care performance as very good.
Transition in Switzerland is not uniform and consequently the implementation of the EULAR/PReS recommendations is variable in Swiss rheumatology centres. Skills of healthcare professionals, continuity between clinical settings, size of the centres, and hospital focus on the needs of adolescents and young adults may represent key predictors of successful transitional care for patients with chronic rheumatic diseases. Future studies should examine these variables.
Pubmed
Open Access
Yes
Create date
06/12/2021 9:13
Last modification date
25/03/2022 7:37
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