To say or not to say: a qualitative study on the disclosure of their condition by human immunodeficiency virus-positive adolescents.

Details

Serval ID
serval:BIB_8D1378B92F16
Type
Article: article from journal or magazin.
Collection
Publications
Title
To say or not to say: a qualitative study on the disclosure of their condition by human immunodeficiency virus-positive adolescents.
Journal
The Journal of Adolescent Health
Author(s)
Michaud P.A., Suris J.C., Thomas L.R., Kahlert C., Rudin C., Cheseaux J.J.
ISSN
1879-1972[electronic]
Publication state
Published
Issued date
2009
Peer-reviewed
Oui
Volume
44
Number
4
Pages
356-362
Language
english
Notes
Publication types: Journal Article ; Research Support, Non-U.S. Gov't
Abstract
PURPOSE: Human immunodeficiency virus (HIV)-positive adolescents face a number of challenges in dealing with their disease, treatment, and developmental tasks. This qualitative study describes some of the reasons why, and the extent to which, adolescents may or may not disclose their condition to others. METHODS: A semistructured interview lasting 40-110 minutes was conducted with each of 29 adolescents 12-20 years old, 22 female and seven male) living in Switzerland. Interviews were tape recorded and transcribed verbatim. The analysis of the content of interviews allowed us to identify salient topics (e.g., disclosure), which were then explored in detail. RESULTS: Of 29 participants, eight had not disclosed their condition to anyone outside the family, 19 had disclosed it to good friends, and 16 had disclosed it to some teachers. Four participants had engaged in public disclosure, and six of 10 sexually active teenagers disclosed their status to their partners. The attitudes toward disclosure among younger adolescents were mostly related to those of the parents, particularly the mother. Older adolescents, engaged in their search for autonomy, tended to decide independently what to say and to whom. Although foster/adoptive parents would often encourage disclosure, biological parents, especially HIV-positive mothers, insisted on not disclosing the adolescent's status for fear of stigma. CONCLUSION: The health care team should systematically address the issue of disclosure with the adolescent and his family (or foster parents), the aim being to balance the right of the adolescent and that adolescent's family to maintain privacy against the concerns of sexual partners, as well as the adolescent's interest in divulging HIV status to relatives, school staff, and friends.
Keywords
Adaptation, Psychological, Adolescent, Child, Female, HIV Seropositivity/psychology, Humans, Interviews as Topic, Male, Switzerland, Truth Disclosure, Young Adult
Pubmed
Web of science
Create date
04/08/2009 14:53
Last modification date
20/08/2019 15:51
Usage data