"I Wish I Knew": Assessing Older Adults' Perceived and Actual Knowledge of Their Partners' End-of-Life Preferences.
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State: Public
Version: Author's accepted manuscript
License: Not specified
Serval ID
serval:BIB_6C2B215B6496
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
"I Wish I Knew": Assessing Older Adults' Perceived and Actual Knowledge of Their Partners' End-of-Life Preferences.
Journal
Innovation in aging
ISSN
2399-5300 (Electronic)
ISSN-L
2399-5300
Publication state
Published
Issued date
04/2025
Peer-reviewed
Oui
Volume
9
Number
6
Pages
igaf038
Language
english
Notes
Publication types: Journal Article
Publication Status: epublish
Publication Status: epublish
Abstract
Despite the importance of surrogate decision-making by partners at the end of life, there is only limited research on older adults' knowledge of their partners' end-of-life preferences. Hence, this study investigates older adults' perceived and actual knowledge of their partners' preferences for end-of-life care and medical treatments.
We analyzed data from 667 respondents aged 50+ from Wave 8 (2019/2020) of the Survey on Health, Ageing, and Retirement in Europe in Switzerland. We assessed respondents' actual knowledge by comparing their perceptions of their partners' preferences for end-of-life care and medical treatments with the partners' self-reported preferences. Additionally, respondents were asked to rate their perceived knowledge of their partners' wishes. Associations were assessed using multivariable regression models, adjusting for social, health, and regional characteristics.
Respondents' actual knowledge of their partners' preferences varied, with the share of correct answers ranging from 35% to 81% depending on the preferences. More than 80% of respondents felt that they knew their partners' end-of-life and medical treatment preferences "rather" or "very" well, and those respondents were more likely to identify their partners' preferences accurately.
Improved communication between partners regarding their end-of-life preferences could significantly enhance surrogate end-of-life decision-making. However, since older adults' perceived knowledge of their partners' preferences seems overly optimistic, they may see little need to initiate such conversations by themselves, emphasizing the need for external educational interventions such as role-plays or case study discussions through, say, the community, or healthcare system to encourage such conversations.
We analyzed data from 667 respondents aged 50+ from Wave 8 (2019/2020) of the Survey on Health, Ageing, and Retirement in Europe in Switzerland. We assessed respondents' actual knowledge by comparing their perceptions of their partners' preferences for end-of-life care and medical treatments with the partners' self-reported preferences. Additionally, respondents were asked to rate their perceived knowledge of their partners' wishes. Associations were assessed using multivariable regression models, adjusting for social, health, and regional characteristics.
Respondents' actual knowledge of their partners' preferences varied, with the share of correct answers ranging from 35% to 81% depending on the preferences. More than 80% of respondents felt that they knew their partners' end-of-life and medical treatment preferences "rather" or "very" well, and those respondents were more likely to identify their partners' preferences accurately.
Improved communication between partners regarding their end-of-life preferences could significantly enhance surrogate end-of-life decision-making. However, since older adults' perceived knowledge of their partners' preferences seems overly optimistic, they may see little need to initiate such conversations by themselves, emphasizing the need for external educational interventions such as role-plays or case study discussions through, say, the community, or healthcare system to encourage such conversations.
Keywords
Couples, Medical treatment, Partners’ wishes, Surrogates
Pubmed
Web of science
Open Access
Yes
Create date
24/04/2025 15:05
Last modification date
09/07/2025 7:03