Factors influencing patient satisfaction with the first diagnostic consultation in multiple sclerosis: a Swiss Multiple Sclerosis Registry (SMSR) study.

Details

Serval ID
serval:BIB_653FC3378648
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Factors influencing patient satisfaction with the first diagnostic consultation in multiple sclerosis: a Swiss Multiple Sclerosis Registry (SMSR) study.
Journal
Journal of neurology
Author(s)
Kamm C.P., Barin L., Gobbi C., Pot C., Calabrese P., Salmen A., Achtnichts L., Kesselring J., Puhan M.A., von Wyl V.
Working group(s)
Swiss Multiple Sclerosis Registry (SMSR)
Contributor(s)
Anderseck B., Calabrese P., Chan A., Disanto G., Engelhardt B., Gobbi C., Haussler R., Kamm C.P., Kagi S., Kesselring J., Kuhle J., Kurmann R., Lotter C., Luyckx K., Merkler D., Monin P., Muller S., Nedeltchev K., Pot C., Puhan M.A., Rapold I., Salmen A., Schippling S., Vaney C., von Wyl V.
ISSN
1432-1459 (Electronic)
ISSN-L
0340-5354
Publication state
Published
Issued date
01/2020
Peer-reviewed
Oui
Volume
267
Number
1
Pages
153-161
Language
english
Notes
Publication types: Journal Article
Publication Status: ppublish
Abstract
Patient satisfaction is predictive of adherence, malpractice litigation and doctor-switching.
To investigate which factors of the first diagnostic consultation (FDC) influence patient satisfaction and which topics persons with multiple sclerosis (PwMS) thought were missing.
Using retrospective patient-reported data of the Swiss Multiple Sclerosis Registry from PwMS with relapsing disease onset, we fitted ordered logistic regression models on satisfaction with FDC, with socio-demographic and FDC features as explanatory factors.
386 PwMS diagnosed after 1995 were included. Good satisfaction with the FDC was associated with a conversation more than 20 min [multivariable odds ratio, 95% confidence interval 3.9 (2.42; 6.27)], covering many topics [1.35 (1.19; 1.54) per additional topic], the presence of a significant others [1.74 (1.03; 2.94) ], and shared decision making [3.39 (1.74; 6.59)]. Not receiving a specific diagnosis was main driver for low satisfaction [0.29 (0.15; 0.55)]. Main missing topics concerned long-term consequences (reported by 6.7%), psychological aspects (6.2%) and how to obtain support and further information (5.2%).
A conversation of more than 20 min covering many MS relevant topics, a clear communication of the diagnosis, the presence of a close relative or significant other, as well as shared decision making enhanced patient satisfaction with the FDC. ClinicalTrials.gov Identifier: NCT02980640.
Keywords
Diagnosis communication, First diagnostic consultation, Multiple sclerosis, Patient satisfaction, Registries, Shared decision making
Pubmed
Web of science
Create date
10/10/2019 20:54
Last modification date
02/09/2020 5:22
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