Assessing Preferences in Patients with Head and Neck Squamous Cell Carcinoma: Phase I and II of Questionnaire Development.

Details

Serval ID
serval:BIB_56B0CF596533
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Assessing Preferences in Patients with Head and Neck Squamous Cell Carcinoma: Phase I and II of Questionnaire Development.
Journal
Cancers
Author(s)
Bonomo P., Maruelli A., Saieva C., Taylor K., Singer S., Patelli Z., Rogers S., Mattavelli D., Simon C., Scotté F., de Oliveira T.B., Murphy B., Rhoten B.A., Tassini U., Fallon M., Gatidis O.N., Yarom N., Bergamini C., Bossi P.
ISSN
2072-6694 (Print)
ISSN-L
2072-6694
Publication state
Published
Issued date
30/11/2020
Peer-reviewed
Oui
Volume
12
Number
12
Pages
E3577
Language
english
Notes
Publication types: Journal Article
Publication Status: epublish
Abstract
Shared-decision making for head and neck squamous cell carcinoma (HNSCC) is challenged by the difficulty to integrate the patient perception of value within the framework of a multidisciplinary team approach. The aim of this study was to develop a questionnaire to assess the preferences of HNSCC patients with respect to the disease trajectory, expected treatment, and toxicities. In accordance with the standardized EORTC Quality of Life Group's methodology for the development of quality of life modules, a phase 1-2 study was envisaged. Following a systematic review of the literature, a consolidated list of 28 issues was administered through a semi-structured interview to 111 patients from 7 institutions in 5 countries. Overall, "cure of disease", "survival", and "trusting in health care professionals" were the 3 most common priorities, being chosen by 87.3%, 73.6% and 59.1% of patients, respectively. When assessing the correlation with the treatment subgroup, the issue of "being thoroughly and sincerely informed about treatments' efficacy and survival expectation" was highly prevalent in an independent manner (71.4%, 75% and 90% of patients in the follow-up, palliative and curative subgroups, respectively). Based on prespecified scoring criteria, a 24-item list was generated. Pending clinical applicability, further testing and validation of the questionnaire are warranted.
Keywords
head and neck cancer, multimodal therapies, patient preferences, patient priorities, quality of life
Pubmed
Web of science
Open Access
Yes
Create date
21/12/2020 15:30
Last modification date
05/11/2021 6:39
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