Meaning in life in patients with amyotrophic lateral sclerosis.

Details

Serval ID
serval:BIB_3F083466F1AC
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Meaning in life in patients with amyotrophic lateral sclerosis.
Journal
Amyotrophic Lateral Sclerosis
Author(s)
Fegg M.J., Kögler M., Brandstätter M., Jox R., Anneser J., Haarmann-Doetkotte S., Wasner M., Borasio G.D.
ISSN
1471-180X (Electronic)
ISSN-L
1471-180X
Publication state
Published
Issued date
2010
Volume
11
Number
5
Pages
469-474
Language
english
Notes
Publication types: Journal Article ; Research Support, Non-U.S. Gov'tPublication Status: ppublish
Abstract
The construct 'meaning in life' (MiL) has become increasingly important in palliative care. Several meaning-focused interventions have been developed recently. The aim of this study was to investigate MiL in patients with amyotrophic lateral sclerosis (ALS) and compare the findings with a representative sample of the German population. In the newly developed 'Schedule for Meaning in Life Evaluation' (SMiLE), respondents first list individual areas that provide meaning to their life before rating their current level of importance and satisfaction with each area. Overall indices of weighting (IoW, range 20-100), satisfaction (IoS, range 0-100), and weighted satisfaction (IoWS, range 0-100) are calculated. Results of our study showed that 46 ALS patients completed the SMiLE: the IoS was 74.7 ± 20.2, the IoW 88.1 ± 10.1, and the IoWS 76.3 ± 20.5. Satisfaction with MiL was negatively associated with disease duration and degree of functional impairment. After adjustment for age, sex, and marital status, the representative sample (n = 977) scored significantly higher in the IoS (82.8 ± 14.7) and the IoWS (83.3 ± 14.8). Compared to the general population, ALS patients list more meaning-relevant areas, are more likely to list partner, and less likely to list health. Thus, response shift seems to be a central coping mechanism in ALS patients. Regarding their major MiL areas, they shift their focus away from decreasing health status and towards supportive relationships.
Keywords
Adolescent, Adult, Aged, Amyotrophic Lateral Sclerosis/physiopathology, Amyotrophic Lateral Sclerosis/psychology, Attitude to Health, Cross-Sectional Studies, Female, Germany, Humans, Male, Middle Aged, Palliative Care, Personal Satisfaction, Quality of Life, Young Adult
Pubmed
Web of science
Create date
14/01/2014 10:31
Last modification date
20/08/2019 13:36
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