Experiences of helplessness and fear among caregivers diagnosed with severe mental illness and co-caregivers: The Danish High Risk and Resilience Study - VIA 7.

Details

Serval ID
serval:BIB_3204B338DDFE
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Experiences of helplessness and fear among caregivers diagnosed with severe mental illness and co-caregivers: The Danish High Risk and Resilience Study - VIA 7.
Journal
Development and psychopathology
Author(s)
Rohd S.B., Hjorthøj C., Ohland J., Gregersen M., Hemager N., Søndergaard A., Christiani C.A., Spang K.S., Ellersgaard D., Burton B.K., Melau M., Greve A., Gantriis D.L., Jepsen JRM, Plessen K.J., Mors O., Nordentoft M., Harder S., Thorup AAE
ISSN
1469-2198 (Electronic)
ISSN-L
0954-5794
Publication state
Published
Issued date
08/2023
Peer-reviewed
Oui
Volume
35
Number
3
Pages
1540-1551
Language
english
Notes
Publication types: Journal Article ; Research Support, Non-U.S. Gov't
Publication Status: ppublish
Abstract
This study investigates indicators of disorganized caregiving among caregivers of children who have a familial predisposition of schizophrenia spectrum psychosis (SZ) or bipolar disorder (BP), and whether indicators of disorganized caregiving are associated with the caregivers' and children's level of functioning as well as the children's internalizing and externalizing behavior problems. Indicators of disorganized caregiving were assessed with the Caregiving Helplessness Questionnaire (CHQ). Level of functioning was evaluated using the Children's Global Assessment Scale and the Personal and Social Performance Scale, while dimensional psychopathology were measured with the Child Behavior Checklist. 185 caregivers belonging to a SZ combined group (i.e., SZ-I + SZ co-caregiver), 110 caregivers to a BP combined group (i.e., BP-I + BP co-caregiver), and 184 caregivers to a population-based control group provided data on CHQ. Having a history of SZ or BP or being a co-caregiver to a parent with SZ or BP was associated with higher levels of experiences of helplessness and fear. Higher scores on helplessness were associated with lower level of functioning among caregivers and children and with children having externalizing/internalizing behavior problems. These results emphasize the need for interventions addressing indicators of disorganized caregiving in families with SZ or BP.
Keywords
Child, Humans, Caregivers, Mental Disorders, Bipolar Disorder, Fear, Denmark, caregiving and child psychopathology, children at familial high risk, indicators of disorganized caregiving, level of functioning, parental mental illness
Pubmed
Web of science
Create date
01/11/2022 13:16
Last modification date
15/08/2023 6:59
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